Ebony’s journey with Craniopharyngioma
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https://m.facebook.com/Ebonyscraniojourney/
This Beautiful Family Needs Your Support
Ebony is 21months old & had an MRI Scan on the 9th of November 2018 after a fall where she was diagnosed with a Craniopharyngioma Brain Tumour. After a "marking" on the brain was found on a CT Scan from the innocent fall.
Ebony had a follow up MRI Scan in February 2019 at the Lady Cilento Hospital, Brisbane. The scan showed significant aggressive growth of the Tumour and significant visual loss of her left eye.
On the 6th of March 2019 Ebony had major Brain Surgery to drain the fluid from inside the Tumour which resulted in successful removal of most of the Tumour which the Specialists thought would be impossible.
Ebony has just spent her 6th night in ICU. She has developed Diabetes Insipidus from the Tumour and Endocrinologist are closesly monitoring other hormones which are too low. There is a high risk of the Tumour regrowing until she is old enough to have Radiation Therapy.
Ebony's Mum is unable to work and is sleeping at the Hospital with Ebony not leaving her daughters side while her Dad has had to return home 12hrs drive away for work to keep a roof over their heads when the family get to reunite when Ebony is well enough to return home And her brother is staying with his Aunty and Uncle.
Ebony will need continuing care and needs your help. Her family would be forever grateful.
Thank you in advance.
Alita (family friend) x
This Beautiful Family Needs Your Support
Ebony is 21months old & had an MRI Scan on the 9th of November 2018 after a fall where she was diagnosed with a Craniopharyngioma Brain Tumour. After a "marking" on the brain was found on a CT Scan from the innocent fall.
Ebony had a follow up MRI Scan in February 2019 at the Lady Cilento Hospital, Brisbane. The scan showed significant aggressive growth of the Tumour and significant visual loss of her left eye.
On the 6th of March 2019 Ebony had major Brain Surgery to drain the fluid from inside the Tumour which resulted in successful removal of most of the Tumour which the Specialists thought would be impossible.
Ebony has just spent her 6th night in ICU. She has developed Diabetes Insipidus from the Tumour and Endocrinologist are closesly monitoring other hormones which are too low. There is a high risk of the Tumour regrowing until she is old enough to have Radiation Therapy.
Ebony's Mum is unable to work and is sleeping at the Hospital with Ebony not leaving her daughters side while her Dad has had to return home 12hrs drive away for work to keep a roof over their heads when the family get to reunite when Ebony is well enough to return home And her brother is staying with his Aunty and Uncle.
Ebony will need continuing care and needs your help. Her family would be forever grateful.
Thank you in advance.
Alita (family friend) x
Organizer and beneficiary
Alita Barnes
Organizer
Dolphin Heads, QLD
Maree Newman
Beneficiary