I can’t bear to see my friend so curtailed, so I’m hoping with your help we can get her life back on track, with a brand new wheelchair specific to her needs.
A new chair is around £14,000, if we’re lucky enough to have any money left over after purchasing it, we will donate it to designability a fantastic organisation that amongst other things has designed, produced and loans the amazing Wizzybug, a wheelchair specifically for under fives.
I have been a wheelchair user all my life due to a muscle wasting condition. I use the term “user” because I see my chair as a tool that I use to enable me to fully participate in life. I am not “bound” or “confined” to a chair, because it should be there to ensure I can be as independent as possible. I work full time creating and delivering projects that I hope make a difference to other disabled people’s lives, as I believe everyone should have access to culture and heritage. I travel across the country for my work and recently delivered a project working with the Museum of Liverpool, M Shed in Bristol and the V&A in London, exploring 800 years of disability history.
However in the last year I have never felt more “disabled” because of my current electric wheelchair. It is a new one allocated via the NHS, and exchanged for my old one, but numerous control glitches have been evident since the start. These include two incidents where it has overridden my inputs and driven me off the side of a ramp. The consequences could have been disastrous but thankfully, on these occasions, I was caught by my husband and a friend. Despite repeated efforts, engineers have been unable to rectify the issues and frustratingly my old wheelchair is gone for good. This has greatly restricted my independence and damaged my confidence.
My friends and family have seen the huge impact this is having on my life and convinced me we should fundraise for a new chair which can give me my independence back. I just want to do ordinary things again like get in and out of a taxi for work, go on a dog walk with my husband and get into cafe’s and pubs with my friends and family. Things I used to take for granted, like I guess most people do. We have found a chair that will enable me to do all these things and I would be massively grateful if you could help me achieve this goal.
Thank you for taking the time to read this
Love Esther x