My Daughter Olivia Grace Clay

I am asking for help so we can get our daughter Olivia Grace Clay down to Seattle for her treatment. She was just diagnoised with a rare condition called CRMO (Chronic Recurrent Multifocal Osteyomilitis). It affects her immune system her body is pretty much fighting itself, as well as inflammation and swelling of her bones. The swelling and inflammation causes fractures of her bones. We were told she has a compression fracture in one of her vertabres. There is two ways to get this disorder one is through infection (which she did not get it through infection). The other is through non-infection this is how she got it. They do not know if it is due to genetics or what. So right now she is a medical mystery. If the inflammation and swelling was localized they would treat it diffrently but because its through out her spine and sancrum bone and hip it is really bad.  She will be going through some intense infusions. The infusions is pretty much chemotherapy so we do not know how it will affect her. She could loose her hair, depending on how her body handles it. She will most likely get really sick.  I am not a man to ask for help because of my pride, but I need help for my daughter. If you have ever met Olivia she is the most amazing little girl alive. Thanks for the help and God Bless. If anyone has any questions about this disorder you can message me and I will try and explain. The money is going to help us get gas for the trips down to Seattle Childrens hospital as well as cover medical supplies that our insurance does not cover, vitamins. We also need to buy a double stroller due to Olivia not being able to walk long distances. She will also need to be put on a special diet due to all the medications she is on.. Because of how rare this disorder is they have to treat it like cancer. So the doctors are treating it very aggresivley. I thank you and hope a few people could help us out. Thanks you and God Bless. So we are running into some medical bills that Olivias insurance wont cover so I increased our goal to cover the medicine costs. Thank you so much to everyone that has helped us out.

Donations

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  • Anonymous 
    • $50 
    • 78 mos
  • Bill Keefe 
    • $10 
    • 80 mos
  • Anonymous 
    • $75 
    • 80 mos
  • Anonymous 
    • $25 
    • 80 mos
  • Patty McGuire 
    • $25 
    • 80 mos
See all

Organizer

Joshua Clay 
Organizer
Mount Vernon, WA
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