About 3 weeks ago we discovered Dylan was having some discomfort in her right shoulder. After a walk in visit to OSM, they immediately saw a fracture and gave us a sling and an appointment for a few days later. Two follow up appointments later and her fracture had almost completely healed. Unfortunately, she was still having pain and a loss of mobility in her arm. The dr. at OSM was concerned and sent us for an MRI. Immediately following the MRI appointment, we were sent to Yale. The doctor noticed a mass, and wanted us to rule out anything major. Unfortunately, after consulting with the Orthopedic Oncologists at Yale, the news was not good. They suspected a tumor and scheduled us for a biopsy immediately. That biopsy took place on Friday, June 9th. While that procedure went very well, and her recovery was easy as could be, the pathology confirmed that Dylan has Osteosarcoma. Bone Cancer. It is rare, it is not genetic but does have a high risk of spreading. Dylan's treatment will consist of chemo, surgery and possibly radiation. If we determine in the next several days that this has not spread, the chances curing this disease are high. Complications come if the cancer has spread. We are currently under the care of the doctors at Yale, but we are also in the process of getting a second opinion at Sloan.
Dylan is tough, but emotional. She loves school, she loves her friends and of course her family. She is a doer. She doesn't like to sit idle, she loves sports and being active. This is going to be tough on her, tough on us, tough on her sisters. We don't know what the next few days, weeks or months will bring, but we know that our new normal will be different and difficult. We also know though, that with the support of our amazing family, friends and community, we will get through this. She will fight this, she will be brave and it will make us stronger.
She is expected to start treatment as early as next week. The outpouring of support has been tremendous and in order to keep everyone updated, we created this site. But feel free to reach out directly to me or Frank, words of encouragement and prayer are always welcome.
We can't express the gratitude for the support we are receiving through this campaign. While much of the near future is still very unknown to us, we anticipate out of pocket medical expenses, costs for commuting, parking, living that will accompany hospital or clinic stays at whichever facility we choose (Yale or Sloan). All of the funds here will be used directly and solely for the care of our dauther Dylan on this journey. Thank you from the bottom of our hearts
All our love, Michelle & Frank
- Nicholas Marks
- Sue Olsen
- Alfred Giancarli
- Karin KH
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