Dylan's JNA Tumor Removal
On January 11, 2018, my 17 year old son, Dylan was diagnosed with a Juvenile nasopharyngeal angiofibroma. (JNA) is a rare, benign, highly vascular, and locally aggressive tumor that predominantly occurs in adolescent males. Usually, the presenting symptom is a painless nasal obstruction or epistaxis; however, other symptoms may develop depending on the size and extent of the tumor mass. To put this in easier terms, he has a tennis ball size tumor in his nasal cavity. Currently it is completely blocking his nasal cavity and growing larger daily. It is very aggressive. He is struggling to eat, breath, sleep and overall performing the life of a 17 year old. He has lost a significant amount of weight and feeling worse by the day. A two part surgery is required to remove it. We are uninsured...Costs are piling up and the hospital will not schedule surgery until the all mighty dollar is in place. We are working with the hospital financial department but there is only so much they can do. If any one reading this or anyone that you may know could help, please do so. The tumor is growing quickly and time is not on his side.