Amazingly his inner ears have formed and his cochlears function, however without his hearing device he hears like we hear if we put our fingers in our canals.
This condition is very rare. It has been shown that it effects children bilaterally 1 in 100,000 babies.
For Jack to have outer ear reconstructive surgery and possible ear canal surgery to potentially restore natural hearing, many surgeons in this specialised field are in the United States. The cost is approximately $90,000 AUD per ear. ($180,000 for 2 ears.)
The crucial time of learning and development of speech and language is birth to 5 years, therefore it is vital that Jack has the best hearing device available. These devices are called BAHA ( Bone Anchored Hearing Aid) where it is possible to hear through sound vibrations on your skull (bone) which are delivered to the cochlear so Jack can hear like we do through bone conduction. These devices are $6,500 AUD each ($13,000 for 2.)
Thank you from the bottom of our hearts for any help and support!
- Northgate CC and Quest Chiro
- Lisa Partington
- Various Donations
- Afsaneh Rohani Cadbury Chocolates
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