Drew Sillman Batten Disease Fund

On May 3rd, 2017, Mike and Cara Sillman and received the most heartbreaking and devastating news a parent could hear. Their 6 year old boy, Drew, was diagnosed with a very rare, neurological condition known as Juvenile Batten Disease (cln3). The facts about this terrible disease are difficult to list. This fatal disease typically begins with vision loss. Seizures occur soon after and cognitive skills begin to fade. Communication will diminish and Drew will be bound to a wheelchair. Juvenile batten patients typically have a life expectancy into their late teenage years to early twenties.

There is hope with new developments in recent gene therapy research. We are raising funds to help the family with medical/travel/trial expenses and to increase awareness of this rare disease. The money raised will go to the Sillman family and likely to assist with expedited research as clinical trials are just around the corner.

Donations

 See top
  • Allure Health and Med Spa 
    • $300 
    • 29 mos
  • Anonymous 
    • $1,000 
    • 37 mos
  • Ben and Leslie Christensen  
    • $50 
    • 39 mos
  • Max Rudolph 
    • $100 
    • 39 mos
  • Debbie &. Todd Cooper 
    • $300 
    • 39 mos
See all

Organizer and beneficiary

Larissa Codr 
Organizer
Omaha, NE
Drew Sillman 
Beneficiary
  • #1 fundraising platform

    More people start fundraisers on GoFundMe than on any other platform. Learn more

  • GoFundMe Guarantee

    In the rare case something isn’t right, we will work with you to determine if misuse occurred. Learn more

  • Expert advice, 24/7

    Contact us with your questions and we’ll answer, day or night. Learn more