The initial diagnosis was that she has a rare genetic disorder called Von hipple-landeau syndrome. They started her on Chemo and have been doing more tests. Last week they biopsied her kidneys and changed their diagnosis to a different genetic disorder called T.S.C.1 or Tuberous Sclerosis Complex 1. Very similar symptoms to VHL. They stopped Chemo and started a new treatment.
Today she went in for the results of her biopsy and was told she has stage 2 renal cancer. She expects to be having surgery soon to remove 1 kidney and part of the other.
She is going to have a long road to recovery and as she cannot work at this time and Fla has no State disability she has no income right now. She is single and lives with a friend there who has been very supportive and has arranged for her to stay with a friend who lives much closer to Tampa. She is waiting for Social Security to rule on disability benifets, but anyone who's been through that knows how long that can take.
Anything you can spare would help, she just needs help with living expenses right now, her medical is taken care of so far.
Prayers and thoughts are very much apreciated also.
- Tim Wellborn
- Dave and Rhea Fusaro
- Alan W
- Jeff Lusby
- Mike Lydon
Organizer and beneficiary
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