newest update: jace has been diagnosed with chiari malformation in his brain and we are awaiting neurosurgery consult. The wait lists in Ontario are extremely long, plus the symptoms he’s been having, so I have decided to pursue an opinion from at least one other children’s hospital with chiari expert sooner, but there is a fee required.

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Hi everyone! You may have noticed this is a new gofundme, I figured I would start a fresh one for 2026 so everyone can see exactly what the plans are for this year and what funds will be going to.

If you’re new here/just finding our story- my name is Mara and I am raising funds for the ongoing treatments and therapies that have changed my child with profound disabilities’s life.

If you feel led to donate to help us continue to see what can only be described as miracles, thank you so much.

2026 treatment/therapy breakdown:

-OT/PT intensive - Completed✅

-turbinate reduction, tonsil & adenoid removal✅

-travel and place to stay for MUSE cell treatment

-Melillo method intensive

-low level laser for home

(This will continue to be updated as we know more. This also does not include January 2026 as this gofundme was started in February)