Help Fund a Cure for GM1

“Our little boy has a big smile, an even bigger heart, and we’re on a mission to help him and others like him keep shining.”

Earlier this year, our son Kiaan was diagnosed with GM1 gangliosidosis, an ultra-rare, progressive genetic disorder that affects the brain and spinal cord. It slowly robs children of their abilities including walking, talking, eating and tragically shortens their lives.

Before his diagnosis, Kiaan was developing like any other child. Today, he still runs, plays, and dreams big, but he also faces challenges with motor skills, speech, and daily medications. GM1 has changed our future, but it hasn’t dimmed his light.

We’re partnering with the Cure GM1 Foundation, a beacon of hope for families like ours. Founded by parents who have walked this same road, the foundation is dedicated to funding groundbreaking research, raising awareness, and providing critical resources for families. They have given us not only hope, but a community that truly understands.

Every donation will directly support:

• Groundbreaking research toward treatments and a cure for GM1

• Family resources and support for those impacted

• Awareness efforts so children still searching for a diagnosis can find answers sooner

Your love and encouragement have carried us through more than we can put into words, and we’re endlessly grateful. Now, we would love for you to stand with us in the next step of this fight in finding a cure for GM1. Every donation, no matter the size, is a powerful act of hope, moving us closer to healing, to progress, and to a brighter future for Kiaan and children like him.

No family should face this alone. Together, we can light the way toward a future without GM1.