Hi my name Olivia, earlier this year we did genetic testing that showed Myopathic Ehlers Danlos Syndrome. This exact gene mutation is extremely rare (1 in 1,000,000) there is very little known on how to treat. It affects my connective tissue and muscles. This causes causes many diagnoses including MCAS, POTS, Gastroparesis and two vascular compression disorders called superior mesenteric artery syndrome and nutcracker syndrome. Due to this syndromes this year I have had Nj, GJ and now currently have a GTube. In August I was hospitalized for 9 days after having surgery for my SMA Syndrome. The surgery isn’t a common surgery that is preformed. I was very blessed to find a surgeon in the Springs that would do the surgery. During this recovery is when they found Nutcracker Syndrome which caused me many problems while healing. Nutcracker Syndrome is when your renal vein is compressed by to arteries. This has caused me to have severe back pain, lots of bleeding causing me to be constantly anemic. Do to this I have not been cleared to return to work. We have found a transplant surgeon that has taken my case at Temple University. This surgery that is required for NCS is very complex and a major surgery (Renal Auto Transplant) There is multiple specialized surgeons that will do the surgery. The surgery will be 6 to 8 hours with two open incisions and laparoscopic incisions. They will remove my left kidney and transplant into my right pelvis. I will be out in Philly for a least a month. Do to living in Colorado to travel and living cost are expensive not including the surgery. We are asking for financial assistance and prayers for myself and my family. This surgery will be very hard physically and emotionally. We are still waiting on the exact surgery dates but it will most likely be the first week of December.