Donate to Olivia's Journey of Strength and Hope

Our daughter Olivia is 12 1/2 and was born with several disabilities, which include the severest form of Myelomeningocele Spina Bifida, Hydrocephalus, Arnold Chiari malformation, and several other disabilities, including learning disabilities, ADHD, PTSD, Anxiety,etc.

During our pregnancy with Olivia, we were told our precious warrior would probably never walk, or possibly never even crawl, and would have other serious health issues. From the moment Olivia took her first breath, she was born a very beautiful, strong, determined warrior, and became quite determined to prove all of her doctors wrong. Olivia was able to crawl and walk as a young toddler, which was a beautiful blessing, especially with her level of Myelomeningocele. But it has not been an easy battle for Olivia. At birth, Olivia had to have her back closure surgery to repair her back, and then at 2 days old, she had to have a VP shunt placed in her brain to help with her severe level of Hydrocephalus. Then, right before Olivia’s first birthday, she had to have a life-saving bladder surgery because she had severe kidney failure. Throughout her 12 1/2 years, Olivia has undergone over 30 brain surgeries due to major complications with her VP shunt that was placed in her brain to help drain her spinal fluid, and we spent a lot of time in and out of the hospital due to several complications and surgeries. At age 11, Olivia had a very extensive double leg and foot surgery, which required well over a year for Olivia to recover. Despite having to have all of these complicated surgeries, Olivia has always had a beautiful outlook on life. She is so kind, has a heart of gold, and has such determination and strength, and does not let her disabilities hold her back from enjoying her life. She is truly a beautiful inspiration.

However, our journey has been financially very difficult for our family.

In September 2024, Olivia had to have a new adjustable VP shunt installed in her brain due to another shunt malfunction, and we were hospitalized for a week 3 hours away from home. Then, in January 2025, Olivia started having severe back pain, which unfortunately sometimes happens with her diagnoses, but this was not normal for Olivia to be in so much pain. We traveled back to our children’s hospital 3 hours away from our home, and we were able to determine after several tests and procedures that Olivia has a tethered cord in her spine, which is something we were very concerned about. During this duration, we ended up having to stay down at our children’s hospital for two months. This was very difficult for us to have to be 3 hours away from home, and away from our other children, pets, and family, and this really affected us financially. Currently, we are barely making ends meet as my husband is very ill, and has become legally blind, and unable to work at the moment. My husband has always been a very hard worker and has been our sole provider for our family, so to say things have been challenging is quite an understatement, and we are in desperate need of financial assistance. We have never asked for help like this in the past, so this has been quite humbling. We hope that you can find it in your heart to contribute to our family’s financial needs during our precious warrior’s spine surgery and recovery journey. Olivia’s tethered cord in her spine has caused several other health complications, including bladder complications and some severe cysts that require immediate attention. Spine surgery and surgery to remove some very concerning cysts is scheduled for March 5th, 2025. at 5:30 Am. This surgery is going to make Olivia’s recovery process a little more challenging than we expected, but we know that God will see us through. If you could please find it in your heart to help donate to our family’s needs, we would greatly appreciate it, and We thank you from the bottom of our hearts. If you are unable to help donate, we would like to ask if you would please help share our story, and keep Olivia, and our family in your thoughts and prayers. We would be so ever grateful.

Love, The Magee Family