UPDATE!! 3-19-25. Jaxson was making progress post surgery getting through being home for weeks to then attending school in his wheelchair! In February he made his transition out chair and out of the cast on the left leg and into his walker. This has been a hard transition but with love and patience and the support of everyone at school he was getting around “granny style” as he calls it. The school counselor even gave him tennis balls for the back of his walker!

Then Sunday march 16th happened. Jaxson was excited to have pizza for dinner so like any other time he made his way to the dinner table, as he was coming around the corner the wheel caught on shelf that has wrought iron legs. He threw the walker forward and he went backwards…. And unfortunately that’s all it takes. Jaxson was scared and panicked and at first we thought maybe just scared from the fall. He did complain of pain, we thought muscle soreness. He didn’t want to go the hospital, he wanted to lay down. The next morning ( St. Patrick’s Day ) he was saying it still hurt so we got him in an epsom salt bath to see if that helped, it helped him nap but not the pain. We ended up going to mercy to have X-rays just to make sure it wasn’t serious.

Fast forward through X-rays phone calls doctors talking to one another, we were splinted and sent to his Doctor at Shriners for surgery.

He ended up fracturing both femurs, just from a fall on carpet. His dr. moved mountains to get Jaxson in at noon march 18th after abut 2/12 hours she set, k-wired, pinned and casted both legs.

And here we are again set back to where we were. After discussing the surgery with his doctor (whom also has OI) she had decided that once she manipulated his femur bones the fragility of both them is severely compromised. We are looking at surgery this summer for rods in both femurs. Jaxson is supposed to be starting bisphosphonates, but insurance has chosen twice to deny. After this meeting with his doctor she said there’s no way they can now, so in the future here soon that will be protocol for him. We have a long way to go! But we will not give up! Everyone in Jaxson’s life has made a hige difference to him, brought him joy, laughter, jokes, and a whole lot of love. We thank you everyone so much as the littlest bit helps always

—————————————————

After 7 and 1/2 hours we are complete. all 4 extremities have an alteration of some kind. It was a rough day for us to say the least. He had both elbows operated on and his hardware was removed. He had a rod inserted into his left tibia fibia ( lower leg). And he had his growth plate surgery on his right knee. He has a long road ahead with this recovery and considering he has osteogenesis imperfecta a life long road. We are extremely grateful for everyday and opportunity we get. Thank you for all the support. ❤️

—————————————————

As you know, Jaxson’s surgery was moved to Tuesday, December 3rd. With that being said, we have lost our spot at the Ronald McDonald House and are currently on a waitlist for the Kiwanis House. If we are not able to get into the Kiwanis, we are looking at a hefty hotel bill while we are down there, even with a hospital referral. Anything helps, this is not the best time for anyone I know. Just wanting to put it out there, medical costs are no joke, and also no fun for anyone, even with the best insurance.

————————————————

As we have anticipated surgery all year, the day is finally coming!

We had his pre-op appointment down at Shriners, and his overall game plan for what was being done has changed from just one rod in his one leg to now he will have a slim nail or FDR rod in his left (depending on best fit), and growth plates in the right knee and ankle. While he is under, they will also be extracting the hardware that Jaxson has in both elbows from his previous surgeries, which is an L plate and screws.

With that being said, we have never done anything like this; recovery will be extensive. He will be out of school on home and hospital until the earliest January 7th. I will be taking six weeks off work. I have shared a lot about Jaxson, his condition (osteogenesis imperfecta), and how much of a light he is for us and others. We wanted to throw this out there if anyone wanted to help.