CRPS the Suicide Disease, help Stevie Fight

Hi! My name is Shelley, I am doing a fundraiser for my dear friend Stevie.

A year ago, Stevie was a highly active individual in our community, she was an avid pickleball player, ran through the neighborhood, WALKED, swam and had a very normal and active life. Stevie now has a highly debilitating disease called CRPS, Complex Regional Pain Syndrome, that has taken all of that away and much more. This disease affects the nervous system and usually begins slowly in the extremities. 

In the case of Stevie, the disease started in her left foot. To give a sense of what she experiences, the ball of her foot swells to the point that she cannot walk on it, then it has the sensation of it being on fire. In addition, her foot will occasionally mottle. Her foot and toes will turn black, this will move upwards from her foot up her leg through her veins and cause excruciating pain. Nothing can touch her foot without causing pain. 

CRPS is often misdiagnosed, since beginning stages mimics so many other illnesses. There is no cure, and it is affecting more and more people every day. 

Stevie has kept a very positive attitude, always has a smile on her face. Stevie’s disease shows her no mercy, it has no cure and gets progressively worse daily, presenting her with diabetes, ear pain, blistering and has aggressively moved into her other foot and both hands. The pain, she explains is that of a million fire ants in her hands. 

The disease is taking a toll on her and her family, not only mentally and physically, but financially. Costs for treatments and medication are overwhelming. Stevie’s doctor told her that this is the most aggressive case he has ever seen. Stevie has been doing a lot of research on her disease, and possible treatments. All current options are very expensive, require a large time commitment and are not covered by her insurance. Any treatments at this juncture will not cure her, or reverse the effects, but there is hope that it will stop the progression and relieve her from the pain, giving her back her life. 

There are several avenues of treatment for Stevie, all of which are costly and of course there are NO GUARANTEES. Stevie is now reaching to out of state and country specialists who have had high success rates working with CRPS patients, in reducing or eliminating pain. 

Stevie has been accepted for treatment in Italy, CRPS Facility -Neridronate Treatment has been used for 6 years in Italy and is the MAIN Treatment for CRPS. $30,000 for 4, 2 ½ hour infusions over a two-week span. Neridronate acts directly on the root cause of CRPS, acting on the bone of the affected area and alleviating the pain gradually. As the bone gains strength, the symptoms will slowly fade away by themselves leading to complete remission or a significant decrease in pain. The Neridronate takes 6 months to completely settle in. The cost of this option does not include airfare or food. 

Please help her friends help her by participating in this fundraiser to raise money so she can begin treatment. 

Thank you so much for your generosity and support. Feel free to contact us for more information CRPS IS DREADFUL. 

CRPS, Complex Regional Pain Syndrome: 

• Neurological disease, also known as the “Suicide Disease”, known for being the most excruciating pain syndrome 
• It is a condition that can torment a person for an incredibly long period of time 
• Burning pain, sensitive skin, changes in skin temperature, changes in skin color and texture, changes in nail and hair growth patterns, swelling and stiffness, decreased ability to move the affected body part. 
  

 Please help our warrior fight this debilitating disease.