Hello ,My name is Rosemary Kiania from Kenya and our

Baby Jason Kiania was born with a rare condition called Spinal Muscular Atrophy (SMA). A condition that he can’t breathe,walk or even eat on his own. But there’s hope — a gene therapy drug that could give him life.The only challenge is the cost of the drug 125 000 USD plus the accumulated hospital bills since October 2024 which in total is 190 000USD.

He has been fighting for his life in ICU for the last months 10 months now.

The drug must be given before he turns 2, and we’re so close. We’ve raised most of the money 87 000USD and we’re still short of 103 000USD — and time is running out.

We’re reaching out with everything we have, asking you to be part of his story. Your kindness, your generosity — even the smallest amount — will make all the difference.

Please help us cross the finish line.

With your help, we can give Jason a fighting chance. And that is why we have formed this group, to raise the funds needed for his treatment and to request for your support in achieving this.

https://nation.africa/kenya/health/fighting-for-every-breath-baby-jayson-s-story-sparks-call-for-sma-awareness-5164366?utm_source=facebook&utm_medium=NTV+Socials&fbclid=IwQ0xDSwMYzMxjbGNrAxjMwmV4dG4DYWVtAjExAAEeh2QaysLmMa6ldat2kWz-rVPZ6stm9X1CQzymLRVC1PrCS7QCTk4AqT8Z164_aem_bGDsaw1X618vKD3HelseFQ&sfnsn=wa