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Donate to help Ksenia receive BoNT-A injections

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Hi, my name is Kimberli. My daughter, Ksenia Rudebeck, was diagnosed with Periventricular Leukomalacia (PVL) in late 2020 due to a traumatic brain injury from birth. Because of this she was also diagnosed with Cerebral Palsy a few months later in 2021. What this means is that she experiences severe developmental delays and physical limitations. She is in pain daily and this is managed by a medication she takes multiple times a day along with injections into her most severely affected muscles every 3 months.

We recently were forced to get insurance through my employer and this new insurance has been causing nightmares for Ksenia's care. They refuse to cover her main daily pain medication (Ozobax) and are forcing us to use a back up medication instead (Baclufen) that is much harder to administer to her and will still cost us hundreds each month more than we had been paying before. On top of this they will not cover her injections (BoNT-A) at all and I will have to pay for them fully out of pocket. Since starting these injections Ksenia has made tremendous strides in physical therapy and has been able to play and enjoy a significantly better quality of life plus no longer wakes up every few hours through the night in pain.

We are working to get Ksenia approved for disability to help offset the sudden changes in her medical costs but are humbly asking for any help we can to afford her injections in the meantime until that happens. We have seen how big of a difference they have made and cannot take this treatment away from her.








To learn more about how BoNT-A is used to help pediatric cerebral palsy patients with spasticity you can go to -https://www.flintrehab.com/botox-injections-for-cerebral-palsy/#side-effects
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Donations 

  • Anonymous
    • $500
    • 2 yrs
  • David Daniels
    • $100
    • 3 yrs
  • Elena Yazykova
    • $50
    • 3 yrs
  • KIMBERLY Chappell
    • $100
    • 3 yrs
  • Rachel South
    • $25
    • 3 yrs
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Organizer

Kimberli Megan Beardall
Organizer
Provo, UT

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