- J
Hi Im Ethan, my mom's oldest child. Shes currently in the hospital with an undiagnosed neurological condition that was originally thought to be a stroke. They have agreed to let her go home while the continue to investigate auto immune diseases and conditions such as MS. I have copied her story below:
Well I have had quite the day. Started last weekend thought i pinched a nerve at the gym which produced constant feeling of "sea legs" and a constant headache. Fast forward to this morning and full on black out dizziness, I managed to grab the bathroom door on the way to the ground. I'm the middle of my 11am meeting, rapid onset fever with profusely pouring sweat. Started my car and drove myself to the general hospital.
Didn't pass stroke protocol so they called a code. I have had blood taken 3 times, 7 different drugs and now 5 more.
CT showed a narrow vessel in my brain, but the MRI ruled it out as cause, also ruled out a bleed and a tumor. I am just waiting for a bed, since I can't really stand or walk. There is a new team of specialists on the way. They had brought in a nice neurosurgeon incase they were operating on my brain. So now the dizziness is so bad I can't stand or walk unassisted.
UPDATE #1: Neurologist was just here, they are changing meds- he wants stronger and different med and sleeping pills. I'm here for sure the weekend and could be longer. Just waiting for the transfer but he wanted to come see me. When my bed is ready I'll be moved to 5A neuroscience ward at RGH, they figure after 2pm.
UPDATE #2: Lots and lots of new drugs, some fun and some otherwise. Neurologist came to see me on his day off, changed meds again and upped some dosages. It's been a pretty bad day the dizziness is sort like someone forcing you to do summersault u can't stop. Internal medicine is coming to double check why I look about 7 months pregnant, hoping it's just fluid retention from some of the drugs but I imagine I'll have an ultrasound because im sore.
UPDATE #3: GOOD NEWS
Iam going home tomorrow. I asked to be managed from home and came up with an agreement with the neurologist. I have a walker for now, im off work for the next week or two. Im going to be treated thru his office for the next 6 to 8 months. They still don't have any idea whats going on, some of the drugs im on are for Auto Immune and MS symptoms. So im managing with the constant headaches and what feels like walking on a boat 24/7 but ill manage. So no, no change but its not getting worse and like the doctors says-you figure out how to make it work.
So mom gets to come home, still undiagnosed, and no better. She won't be able to work for a while and unfortunately has no medical/health benefits or sick time and I was hoping to try and help her out the best I can since she's always looked after us as a single mom and has my little brother to look after. I imagine the prescription aren't going to be cheap, and no money coming in from work. So if you can donate anything to help, we would really appreciate it. If you dont wanna donate here, her email address is nicole erin geddes at gmail dot com (all one word) I know not everyone has money so im sure shed appreciate help with tasks that are going to be exceptionally difficult for her to do like carrying stuff with her walker or bending to clean. Please feel free to share.
Ethan and Ryder
Organizer and beneficiary
Nicole Geddes
Beneficiary



