Our sweet precious daughter, Malia Claudia Moore, aka (Little Bull), was born on June 17th, 2008 with a rare brain disease called Lissencephaly (smooth brain) and Miller Dieker Syndrome (missing Chromosome 17p 13.3). This diagnosis from the beginning was not a happy one, a life expectancy of 2 years with living into the teens to be rare. Malia has overcome numerous hospitalizations, surgeries, and infections over the years. She battles daily seizures and has overcome many health problems including scoliosis and hip dysplasia - all of which we believed to be insurmountable. Her fight for life is incredible and her smile will brighten an entire room.

Over the past 15 years, we have raised tens of thousands of dollars for research on this rare brain disease and have donated to other various charities that help children with disabilities. Funds raised support her overall care, including: a full-time physical therapist, nutrition, supplies, experimental medications, and innovative surgeries (Gtube for feeding, Nissen surgery for reflux, and Vagus Nerve Device to control her seizures). Her physical therapist has increased her life expectancy by working with her and helping her to avoid major surgeries such as hip replacements and spinal surgeries.

We hope and pray that one day we will find an answer to help her with the vicious debilitating seizures and complications with this disease she experiences almost daily.

We are celebrating her 16th birthday with a final in-person benefit trip on September 14th, 2024 at 6pm at Ivar’s River Pub in San Marcos, Texas. We will be having a fun-filled day with a silent auction, live music, and fun for all. We would love to see you there and thank you in advance for your support for this great cause!

10% of proceeds will go to Lissencephaly, Cure Epilepsy and the Parker Lee Project. If you cannot make the fundraiser, please see the link below where you can donate. Thank you for all your prayers and support.