Help Support Everly as She Battles NF1 & Optic Pathway Glioma

Our dear friends are facing every parent’s worst fear. Their sweet Everly has been bravely living with Neurofibromatosis Type 1 (NF1), and in the last few weeks their world changed again when she was diagnosed with an optic pathway glioma, a tumor affecting the nerves connected to her

vision.

Everly has grown up surrounded by doctors, specialists, and regular scans — a “normal” part of life for her family. But nothing could prepare them for the moment they were told she had an optic pathway glioma. It’s the kind of news no parent should ever have to hear.

To protect Everly’s eyesight and stop the tumor from growing, her medical team has determined that she will need a full year of chemotherapy. The road ahead will be long, unpredictable, and emotionally heavy — but if you know Everly, you know she is strong, resilient, and full of light.

Her parents are doing everything they can to keep life joyful and hopeful for her. But between weekly hospital visits, time away from work, travel, rising medical costs, specialized care, and the day-to-day expenses of supporting a child going through treatment, the financial strain is becoming overwhelming.

This GoFundMe is to help ease that burden so her parents can focus on what matters most: caring for their daughter and supporting her through this fight.

If you’re able, please consider donating — no amount is too small. And if you can’t donate, sharing this page means more than you know. Your kindness, prayers, and support will carry this family through the toughest year of their lives.

Thank you for standing with them.

Together, we can help lighten their load and surround their little girl with love, strength, and hope.

With love, Everly’s entourage.