Donate to Emily's EDS Treatment

Hello friends.

Many of you know me, but you likely don't know that I struggle with a connective tissue disorder called Ehlers-Danlos Syndrome. This disorder has been difficult to manage in my adult years for many reasons. It comes with extreme fatigue, constant pain, dislocation of my joints, brain fog, dizziness, and over time, invites several other difficult conditions. Though I came to a place of effective management, going through my pregnancy has caused resolved issues to resurface and intensified the instability in my joints. I have been facing growing pain over the last year as well as a decrease in mobility.

My latest medical assessments have pointed out some significant and scary projections for my health and my experience with chronic pain. The difficulty with EDS is that there are no cures and few effective treatments. Much of my care has been symptom management and pain management.

There is an experimental treatment via injections into my most unstable joints over a series of months. It will be painful and it will be expensive. This procedure has an 85% success rate and aims to force my ligaments to tighten and strengthen in problem areas.

If these treatments are successful, it will have a major impact on my life. The fatigue and exhaustion from the physical pain will lift, my ability to exercise safely will be restored, and several of my co-occuring health struggles will lessen in severity or resolve. These treatments would also keep me from developing major health challenges as I age.

I hate that our medical systems put us in positions to rely on others' generosity in order for us to be well, but here I am. Humbly seeking support for treatment insurance won't cover that has a high probability of keeping me out of more doctors' offices, all while I have to fight with my insurance company to keep paying for all my symptom management visits.

Please consider supporting me financially, all donations will go directly to this treatment in hopes that I can increase my quality of life, restore my mobility, and decrease the amount of pain I'm living with day to day. If you'd prefer to make a donation directly to me, please private message me.

Thank you for your consideration!

Warmly,

Emily ❤️