Please Help Baby Ezra in His Fight Against Clubbed Feet & Potocki-Lupski Syndrome

Our beautiful baby boy, Ezra, was born on April 11, 2025, and from his very first breath, he has faced challenges no child should ever have to face. Born with clubbed feet and diagnosed with Potocki-Lupski Syndrome—a rare and complex genetic disorder—Ezra’s journey has been one filled with uncertainty, fear, and endless hope.

Potocki-Lupski Syndrome brings many complications: feeding difficulties, developmental delays, low muscle tone, heart concerns, and more. Ezra has already endured countless trips to the NICU, surgeries, and procedures, and currently relies on a feeding tube just to get the nourishment he desperately needs. Watching our tiny fighter struggle every day is heartbreaking, but his strength and spirit inspire us to keep going.

Ezra’s parents are also loving and devoted to their two other children, and balancing Ezra’s intensive medical care with the needs of their family has become overwhelming. The mounting medical bills, therapies, equipment, and everyday living expenses are a heavy burden that no family should carry alone.

We humbly ask for your support—whether through donations or simply sharing Ezra’s story. Your kindness will help us cover Ezra’s medical care and give his family the breathing room they desperately need to focus on what matters most: helping Ezra grow, heal, and thrive.

From the bottom of our hearts, thank you for standing with Ezra and our family during this incredibly difficult time. Every bit of support brings us hope and strength.