Back in January, I got my miracle baby, the one I have always wanted, and he is just that, a pure miracle. But, this miracle came with quite a few surprises. When he was born, we learned that he had translocation Down syndrome, which just made him more adorable, but some medical problems came with it. First, starting with duodenal atresia (a rare birth defect that occurs when the duodenum, the first part of the small intestine, doesn't develop properly), which led us to stay in the NICU for a month after birth due to him needing surgery.

After leaving the NICU, every week we have go to the hospital multiple times for all different specialists. He had very slow weight gain, which told us he has swallowing dysphasia, which now led him to be a tube feed and on top of that, we had to get a liver biopsy. We also found out in the NICU that he had AVSD (atrial complete septal defect), which is two holes in the heart, and we knew heart surgery was gonna have to take place. We had to wait until he was four months old to do the procedure, and that just took place this past week. The surgery was a partial success and partially not. Now his heart isn’t overworking, but it isn’t working properly. He will need to be on oxygen and another medication.

I am not the type to usually reach out for help, but I have exhausted everything else. Things are piling up along with things medically for him. If you are able to help in any way, I would truly appreciate it, and I thank you for taking the time to read this. Anything helps, and please say a prayer for my strong boy.