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Donate for Mya's Critical EDS Genetic Test

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Hello,

My name is Mya Newell. I'm a soon-to-be 32-year-old mother of 7 (just gave birth to lucky number 7 on 3/30/25). My entire life, I have had many health issues which no doctor could figure out. Especially over the last ten years, I've been misdiagnosed and put on over 18 different medications. I've been diagnosed with fibromyalgia, widespread osteoarthritis, chronic muscle spasms, POTS, gastroparesis, and gum disease. All of these diagnoses fall under one disease, which is called Ehlers-Danlos Syndrome (EDS). EDS comes with many, many symptoms and is an autoimmune disease that can only be tested with specialized genetic testing. That test is NOT covered by insurance and costs $1100. I run a small crafting business from home and stay home with the kiddos while my husband works. After just delivering a baby, I was not expecting to have to pay over $1k for a test I so desperately need. I'm not able to go forward with disability without this diagnosis, nor can I get the proper care I need for this disease. If you decide to donate, even share, or simply read my story, I appreciate you so much.
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    Organizer

    Mya Newell
    Organizer
    Sarasota, FL

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