For those of you that may not know Henry's story, he was born at just 24 weeks and due to his early arrival, has faced many hardships and health challenges. At birth, he suffered a severe brain injury resulting in a diagnosis of cerebral palsy, in which he is unable to walk or stand without support, or talk without other assistive devices. Due to the severe brain injury, Henry also developed a seizure disorder.

For the first couple of years of his life, Henry's seizures were able to be controlled with minimal medicine. As he got older, his seizures increased, and the need for more intensive medicines was required. For years, they have tried multiple different medicines, weighing out the pros and cons of their effectiveness combined with the severity of the side effects. As Henry has continued to get older, his seizures have increased in intensity and frequency. Currently, Henry is on six different seizure medications, which are unfortunately doing very little to control his seizures.

After multiple discussions with their neurologist, neurosurgeon, pediatrician, and other healthcare professionals, they have come to the difficult decision to try brain surgery to help with seizure control. This surgery could be life-changing for Henry in which he could live seizure-free or at least controlled with fewer medicines. This procedure, called a hemispherotomy, will essentially disconnect the damaged side of his brain causing the seizures from the healthy side of the brain. While this sounds drastic, it could mean the difference between a life of suffering or the chance to grow and thrive. Surgery is scheduled for April 10th at St. Louis Children's Hospital.

On average, this surgery and hospital stay (about a month's stay) could cost upward of $200,000. While insurance will help cover some aspects of this surgery, it does not account for the time lost from work for Brendan and Allison, the cost of transportation to and from the hospital daily, food costs, childcare for Henry's sisters, Elizabeth and Lily, and rehabilitation costs for Henry. Alison and her family have been long-time clients and very dear friends to us. We have witnessed their hardship and also their passion and drive to provide the best care and life for Henry. We truly know that they will do anything to provide a chance at a better life for Henry and we know that with our support we can make this a little more possible.

We are asking for your support, whether through donations, sharing this page, or sending prayers and love their way. Your support means the world to them and most importantly, to Henry. Every dollar brings them closer to our goal, and every share spreads Henry’s story to someone who might be able to help. With your generosity, we can give Henry a future full of possibility, free from seizures and the burden of multiple medications.