
Support Dominic's Journey to Overcome AMN
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I am Sara Pascarella, and I am writing on behalf of my brother, Dominic. In 2013, my brother's life, as well as our family's, changed forever when he was diagnosed with the devastating disease, Adrenomyeloneuropathy. Adrenomyeloneuropathy (AMN) is a rare genetic disorder affecting 1 in 25,000 people that impacts the nervous system, mobility, and quality of life. Despite all the challenges, my brother graduated from college with a degree in Computer Science and now works full-time. He tries to maintain some of his hobbies and passions he had before, such as having a vegetable garden, curing meats, making pizza, and making wine. As his disease progressed, even menial day-to-day tasks have become extremely difficult for him to do. He now relies on mobility aids such as canes, a walker, and sometimes a wheelchair to get around.
Our hope is that stem cell therapy will provide him relief from this terrible disease and allow him to reclaim part of his life back. A recent small study done showed stem cell therapy safe and effective for AMN.
Unfortunately, stem cell therapy is not yet available in the United States for treating conditions like AMN, which means he needs to travel abroad to a specialized medical facility. The cost of the treatment and travel expenses will be substantial. We are hoping to raise enough funds for him to be able to receive this treatment.
Dominic needs your prayers during this time. We trust and know God is completely in control. If you cannot donate, please share. We thank you for your prayers and support!
Organizer and beneficiary
Sara Pascarella
Organizer
Youngstown, OH
Dominic Pascarella
Beneficiary