Over the last year, our world has fallen apart, Dougie has been diagnosed with MLD (Metachromatic Leukodystrophy). A rare genetic condition that gives him a life expectancy of around 5 years old.
Watching our sweet boy deteriorate has been the most heart wrenching experience that no parent should ever have to face. Dougie has lost his ability to speak, move and do all things that a toddler should be able to do. Eventually this disease will take away his ability to chew, swallow and breath.
As parents, we now know that all we can do is make Dougie’s time left with us as filled with joy and as comfortable as possible.
With your generosity and kindness we hope we will be able to achieve this.
- Dan Davis
- Debbie Jarvis
- Ken Tate
- Dean Greenwood
- Sydney Porter
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