This worsens her reflux, and will require another surgery, performed sometime after she turns 2. If this surgery goes well, she will also have to undergo a Nissen fundoplication, in order to help stall her terrible reflux:
Because of this, it will be years before Eloise will eat food by mouth. She is fed exclusively through her jejunum, via a button and a tube. Liquid food is pumped into her intestine on a continuous flow for 16 hours a day.
Eloise is growing too old for formula; her nutritional needs surpass what regular Similac Formula can give her. She must switch to a special liquid diet. It is more expensive than formula, and she will need more of it. Currently she is fed 68 mls per hour of formula, and she will need 75 mls per hour.
It will be roughly $10,000 to feed her for the next two years. I have done everything I can to convince our health insurance to help cover our costs. Doctor's perscriptions, phone calls, pleading - nothing will convince them it is a 'medical necessity,' even though it is her exclusive source of food.
Beyond that, we are struggling to pay for the myriad of perscriptions, doctor's appointments, drives to Primary Children's Medical Center, the deductible due in January, her clothing and diapers. She soaks through about 4 onesies a day, because she throws up so much. Her second tube, her G-Tube, drains her stomach on a constant basis. This tube drains into a diaper, and she fills at least one every 2 hours.
We are asking for help endeavoring to pay for the many, many months ahead of feeding Eloise through her J-Tube, as well as her many medical expenses. Taking care of Eloise is a heavy responsibility, and I am humbly asking for support from the community. Any little bit helps, and honestly, I can't think of a better way to send good karma into the world than to help feed this sweet little girl!
Also, we will have a Bake Sale on September 20, 12-3. Please contact me if you would like to donate edible goods!
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