Donation protected
If you've come to this page, you may be wondering why we, as a community have chosen to put forth energy and time to raise money for our brother and dear friend, DJ Whitegold, and his family. To give you more background on why it is so important for us to come together for our dear friend's son Rashan, please read below:
(In DJ Whitegold's words)
"Rashan (turning 21 on June 19th) has Aplastic Anemia. His Aplastic Anemia, which was in remission until a couple of months ago, is back...This means his body isn't making blood cells on its own. If it doesn't get corrected with drug therapy, he will need blood transfusions to survive. Essentially if this drug treatment doesn't work he will need to go through bone marrow transplant (which is the only real cure, but comes with significant risk).
He also has PNH (Paroxysmal nocturnal hemoglobinuria), which is an ultra rare blood disease that causes red blood cells to break apart. It happens because the surface of blood cells are missing a protein that protects them from the body's immune system. To treat this we used to get a drug called Solaris that cost $21,000 every two weeks. We were initially told he would need this for the rest of his life, but 6 months ago his coverage was cut off because his PNH levels were low enough that the Government doesn't cover it and doctors monitor closely.
His PNH "clone" this week showed it is rising again which isn't good and may mean that he will begin bi-weekly infusions of that drug again.
Our son is in amazing shape, eats super clean and excercises when he can, but he is always tired, feels like crap and has constant headaches. Doctors honestly don't know why he feels the way he does when they do tests..at his best they are like "well you should feel fine with the levels we see".
He hasnt felt good enough long enough to be able to complete high school (Although he is close)...he doesn't do much and there isn't much we can do about it.
Some very good recent news...After a 2.5 year process he just got approved 2 weeks ago for a disability program that will give him about $800 a month and some coverage for drugs (we have a lot of research to do for this, but are hopeful the pressure of how to pay for drugs that aren't entirely covered will be eliminated)."
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DJ Cova, DJ LV, and I (360) would like to THANK YOU in advance for your positive thoughts, prayers, and donations for Rashan's medical needs.
(In DJ Whitegold's words)
"Rashan (turning 21 on June 19th) has Aplastic Anemia. His Aplastic Anemia, which was in remission until a couple of months ago, is back...This means his body isn't making blood cells on its own. If it doesn't get corrected with drug therapy, he will need blood transfusions to survive. Essentially if this drug treatment doesn't work he will need to go through bone marrow transplant (which is the only real cure, but comes with significant risk).
He also has PNH (Paroxysmal nocturnal hemoglobinuria), which is an ultra rare blood disease that causes red blood cells to break apart. It happens because the surface of blood cells are missing a protein that protects them from the body's immune system. To treat this we used to get a drug called Solaris that cost $21,000 every two weeks. We were initially told he would need this for the rest of his life, but 6 months ago his coverage was cut off because his PNH levels were low enough that the Government doesn't cover it and doctors monitor closely.
His PNH "clone" this week showed it is rising again which isn't good and may mean that he will begin bi-weekly infusions of that drug again.
Our son is in amazing shape, eats super clean and excercises when he can, but he is always tired, feels like crap and has constant headaches. Doctors honestly don't know why he feels the way he does when they do tests..at his best they are like "well you should feel fine with the levels we see".
He hasnt felt good enough long enough to be able to complete high school (Although he is close)...he doesn't do much and there isn't much we can do about it.
Some very good recent news...After a 2.5 year process he just got approved 2 weeks ago for a disability program that will give him about $800 a month and some coverage for drugs (we have a lot of research to do for this, but are hopeful the pressure of how to pay for drugs that aren't entirely covered will be eliminated)."
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DJ Cova, DJ LV, and I (360) would like to THANK YOU in advance for your positive thoughts, prayers, and donations for Rashan's medical needs.
Organizer
J Cruz
Organizer
San Francisco, CA