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Support a child with a rare Digeorge Syndrome

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On June 26th 2000, our youngest cousin Brandon's arrival was both joyous and devastating. Shorty after his arrival he was rushed away to the OTTAWA HEART INSTITUTE and than taken to CHEO (Children's Hospital Eastern Ontario) without my aunt (Donna) being able to meet him. Finally 2.5 days after giving birth my aunt Donna was finally able to meet and hold her precious baby boy, and that as well was short lived, a few seconds after she held him he started having seizures. After multiple tests and extended hospital stays, just before he went to have open heart surgery it was confirmed and was DX with DiGeorge Syndrome. DiGeorge Syndrome is a complex medical collection of many different disabilities and aspects of it, such as (4)heart conditions, parathyroid (Seizures), No immune system, dental issues, autism, moderately intellectually delayed, ADHD/ADD/ODD (Op-positional Defiance Disorder) Liver Cirrhosis, Pancreatic attack , malfunction of the kidneys, Rosacea, (THAT IS JUST A SMALL EXAMPLE OF HIS COMPLEX MEDICAL LIST.
Over the years my aunt Donna was forced to quit her employment and take care of Brandon, she is also a full-time single mother, she has never asked for anything from anyone and has always went above and beyond for her son, her son is her world, shes been fighting this everyday challenge for services or help in all aspects , such as in educational resources, medical services, etc. IT HAS COME TO A POINT where the diseases and disabilities have TAKEN ITS TOLL.
Brandon is currently 19 years old and was recently diagnoised at with Cirrhosis of the Liver, Ocular Rosacea , Photosenativity, MODERATLY Blind, Rosacea acne, (RHINOPHYMA)
With Brandon's recent DX aunt is forced to seek medical attention, hours of driving from her hometown, vehicle repair, lodging fee, paying for unforeseen expenses, like parking, food, rent bills etc, that's just a small list of my aunts daily stress.
WITH THE UNCERTAINTY with all his medical complexities and life experiences my family pleads and would appreciate any financial support you can contribute that can help decrease the financial stress as well as any extra that can help to find some joy in my cousin Brandon's Wish List, or someone who can help donate a reliable vehicle to my aunt Donna because her vehicle is run down and is ready for scrap, these are obstacles my aunt faces on a daily BASIS, and being able to create this page gives me hope. That there is faith in humanity and that we can help make a difference. Because he is my little cousin and he deserves the world!!!! BRANDON WE LOVE YOU!!!!!!
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    Organizer

    Melissa Leclair-Laflamme
    Organizer
    Aylmer, QC

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