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Diana´s medical & empowerment fund

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Hi, I know it has been a difficult year for everyone. This year has brought us challenges we never thought we’d face. Among those, we have been quarantined. The funny thing is I’m used to be quarantined and not just to a house or an apartment, but to a room, or a bed. To miss the outside and my friends. For a moment you lived like I did the last 11 years.  I asked for your help last year, and I’m incredibly grateful to everyone who helped me, cause thanks to your help I was able to raise $2100 - GoFundMe fees and that was half my insurance and with my savings and selling some stuff I paid the other half!! Sadly at the end of July of last year, I had to have surgery, they had to extract not one, but EIGHT tumors, I had a lot of cortisone so the stay on the hospital was the shortest ever, it was only 15 days!!! However, it has been THE HARDEST recovery ever for me. In fact, I still haven’t recovered fully. Since I had a lot of cortisone I developed Cushing Sindrome which made me HUGE I’m obese and every attempt I make to lose weight not only doesn’t work but I see myself gaining more weight. And since I’m huge it’s way more difficult to move, more dangerous cause of the osteoporosis, and the pains are more intense and I still have pains from the surgery. And of course, I’m very tired cause of the cortisone and the Cushing and the obesity. From August to January I was with so much pain physically and my brain was so foggy that I couldn’t see or talk to my friends cause when I tried to text them I would write nonsense. And this semester I couldn’t see them cause the Pandemic. So obviously my attempt at independence was frustrated and I’m here again asking for your help cause soon I’ll have to pay my Insurance and with all the events of this year, it has raised to $4500. Any small amount helps. Thank you immensely for your help either sharing this so it can get to more people, or for helping me with money. I thank you with all my heart. Without insurance, I would be lost cause my treatments are way more expensive than the insurance.

Hola, yo sé que este año ha sido un año muy difícil. Nos ha traído retos que nunca pensamos tendríamos que pasar. Entre estos, hemos tenido que estar en cuarentena. Lo chistoso, es que yo estoy acostumbrada a estar en cuarentena y no solo en una casa o depa, sino en un cuarto o una cama. A extrañar afuera y a mis amigos. Por un momento vivieron como Yo los últimos 11 años. Les pedí su ayuda el año pasado, y estoy increíblemente agradecida a todos los que me ayudaron, con su ayuda pude juntar $2100 - las cuotas de GoFundMe y eso fue la mitad de mi seguro! Y con mis ahorros y vendiendo algunas cosas pude pagar la otra mitad!! Lamentablemente al final de Julio del año pasado me tuvieron que operar para quitarme no uno, sino OCHO tumores. Me dieron mucha cortisona para tener una mejor recuperación y tuve la recuperación en hospital más corta de estos 11 años! Fueron solo 15 días!!! Sin embargo ha sido la recuperación más difícil de todo el tiempo que llevo enferma. En realidad todavía no termino en recuperarme. Como tuve mucha cortisona desarrollé el Síndrome de Cushing que me ha vuelto ENORME estoy obesa y cada intento que hago de adelgazar no solo no funciona, sino que aumento de peso. Como estoy enorme me es más difícil moverme, más peligroso por la osteoporosis, y los dolores son más intensos, y todavía tengo dolores de la cirugía. Y por supuesto estoy MUY cansada por la cortisona, el Cushing y la obesidad. De agosto a enero estaba con tanto dolor físico y mi cerebro estaba tan nublado que no podía ver o hablar con mis amigos, cuando intentaba escribirles, escribía cosas sin sentido. Y este semestre no los vi por la pandemia.. Obviamente mi intento de independencia fue frustrado y estoy aquí otra vez pidiendo su ayuda, por que pronto tengo que pagar un nuevo año del seguro. Y con todos los eventos de este año subió a $4500. Cualquier cantidad me ayuda. Inmensas gracias por su ayuda, ya sea a compartir para que le llegue a más gente, o por ayudarme a juntar lo del seguro. Les agradezco con el corazón por que sin el seguro estaría perdida por que mis tratamientos son mucho más caros en cualquier lugar que mi seguro.

I am raising $18,500 US dollars fo my medical and empowerment fund, I ask for your help.
Hi I’m Diana, in November 2009 I was finishing my 7th semester of undergraduate studies on Mathematics, planning to apply for graduate studies in Europe, and believing the world was my oyster and I was going to conquer it. Then my world changed. A normal day by all accounts, after a long week at school and a very fun weekend with friends I returned home and fought with my sister and she told me “I will never do anything else for you”, what did I care, I was 23 and I didn’t need anyone’s help, I could do anything I wanted. I took a shower and went to bed as always. Except I couldn’t sleep cause I had a bump in my hip that wouldn’t let me lay down on bed comfortably. That was a long and uncomfortable night. I woke up and call a friend who was studying medicine, asked him to come and check me out cause it didn’t feel right. My friend being a good future Md. told me to go to a hospital, it clearly was something important and he couldn’t diagnose me like that, and so, it all began... 

Faster than I could process it, I learned I had bone cancer, and before I could pronounce correctly Chondrosarcoma, it was January 2010 I was 24 years old and I had have an Hemipelvectomy. A very complicated surgery in which they took out the 10 kilos tumor and half my hip. I couldn’t walk, and to relive myself in bed I needed the help of 4 people. My big sister, who 2 months before had promised never to help me again, became my savior and primary caregiver. This meant she took me in ambulance to my doctors appointments, she fed me and made sure everything I needed was there, including the grueling and tedious insurance paperwork. But THANK GOD, I had INSURANCE. 

Fast forward to 2019, almost 10 years later. I’ve had 6 tumors and 2 rounds of radiation therapy. I’ve learned how to walk again 4 times. My ovaries and my adrenal glands were burned. Since my adrenal glands were burned I don’t produce cortisol, so I suffer from adrenal fatigue, which means I’m pretty much always tired and I’m not able to function or be ‘productive’, so I’m a spoonie (to learn about the spoon theory https:// en.m.wikipedia.org/wiki/Spoon_theory ). My bladder was also burned so I have cystitis which means every other fortnight I get a bladder infection. Per my adrenal insufficiency I take hydrocortisone, which lowers my immune system so I’m more prone to infections like pneumonia, which I’ve had, and makes worse my cystitis and the infections make worse my fatigue which makes me ingest more hydrocortisone haha right! My ovarian insufficiency means I don’t produce hormones so I have osteoporosis, which only makes worse the pains that I have from the surgeries in which the Drs. took more than half my hip, half my coccyx, half vertebrae of each lower vertebrates and half my back muscles. My nerves were either cut or damaged so I have sporadic pains and can’t move my upper left leg. So I can’t walk very much, but being sitting down is extremely painful. 

The first 4 years my big sister was my primary caregiver while finishing her under graduate studies and once she finished those, she started working, the next 4 years my mother became my primary caregiver and after that it was my dad’s turn. But at the end of last year he almost died due to a cardiovascular problem and lost function of his right lower leg. He is doing lots of physical therapy to recover his leg function and even though he walks he can’t walk that much. Because of that and Mexico’s current political climax, he was forced to retire from work, all this time he has provided for me and my mom. But now that he is retiring, money is scarce and it won’t be enough to provide for me, even with the help my big sister gives us.  Besides fighting my disease, I’ve been fighting all this time to have some kind of independence. Now due to my dad’s disease, he is no longer able to be my caregiver and my mom has to be his caregiver which means I have to be independent. So I am asking for your help. Specifically to accomplish this goals: I need a SUV to be able to load my electric wheelchair on my own, and move around without the help of others. Right now I have a 2002 neon to go to my Drs. appointments etc. but my wheelchair has to be disassembled and loaded in the car by 2 other people cause it is really heavy. With $15,000 and selling my car I could buy a used one. 

I need to pay my Insurance. Im launching a beauty business of artisanal natural products and I hope eventually it will allow me to be financially independent or at least to pay my insurance, however in July I have to pay the next year of insurance. Which is $3,500 a year.

I am raising then $18,500 US dollars. I ask for your help.

For every $100 dollars donation I pledge to send you an email thanking you and in case I achieve my goal, in the mail there will be a photo of the SUV and a surprise electronic present.
For every $500 dollars donation I pledge to send you in addition of the email, a personalized thank you postcard featuring a Mexican landscape.
For every $1000 dollars donation I pledge to send you in addition of the email and the postcard, a sample product of the artisanal beauty line I am about to launch. (This may take a while due to international shipping).
For every $5000 dollars donation I pledge to send a sample box of the artisanal beauty line I am about to launch. (This may take a while due to international shipping).

May the god you pray to bless you. Whether you help me or not, you will be on my prayers, for I pray for a world where health care isn’t privilege and everyone helps each other.
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    Co-organizers (2)

    Luis Pastor
    Organizer
    Miami, FL
    Diana Núñez
    Co-organizer

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