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Diagnosed rare heart condition and heart failure

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Hey ya'll my name is Jill. I am 31 yrs old. March, 2023, I got very sick. My mother knew I was in a bad way, and thankfully I live only a few minutes from the hospital (1.5 min. Max.) Little did we know that very, very short ride made a world of difference. The very difference between life and death in the most literal way possible. 5 minutes after getting to the hospital I started fitting (having a seizure) and my heart rate jumped up to 280 bpm, or, 4.5 Bests PER SECOND!!! I went into cardiac arrest followed by a deadly heart rhythm called "torsades de point." Most people do not survive this rhythm (less then 1 in 10 survive.) (A Normal heart rate is between 60-100)
After a long, painful, and lonely 2 weeks in the hospital, I was finally discharged. I was ultimately diagnosed with heart failure, stress induced cardiomyopathy and a rare life-threatening heart condition called Long QT syndrome (LQTS). My most recent diagnosis are PoTs; Postural orthostatic tachycardia syndrome and Addisons disease.

I have multiple cardiac appointments every month, along with monthly P.C. appointments. I have multiple different Specialist I have to see on a monthly basis. Monthly blood draws. And this does not include all of the medications I now have to be on for the rest of my life.

I have been unable to work since March of 2023. I don't know when or even if I'll be able to return to work. And I was denied Disability after my first attempt(which is usual) I did APPEAL. Which we all know it will be another few months of hoping and praying.

This has absolutely been the hardest thing I've ever had to face. My life is forever changed. There is no more "normal."
Your donations will truly help with day to day expenses, monthly medications, travel to appointments, and everything in-between. It will help not only ME but also my full-time caregivers, MY PARENTS, help navigate this life changing situation. Find the best doctors, cardiologist, Mental Health providers, ect. ANY AND ALL DONATIONS HELP, I understand if you can't donate, it's a tough world! But please share this to friends, family, coworkers, literally anyone. Please

Please Share. Please donate!
I'll continue to FIGHT my FIGHT for as long as I can.

Thank you all for your time and consideration. I appreciate this and more importantly, YOU, more then you'll even know.

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    Organizer

    Jill Roberts
    Organizer
    Meriden, CT

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