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I have made a new GoFundMe because my previous one from when Zoultan was first diagnosed will not allow me to update any information on it..
For anyone who is new & hasn't read or heard about our situation, Zoultan is my 2 year old son he will be 3 on September 9th .. February 27th 2022 Zoultan was diagnosed with a brain tumor called an Ependymoma .. The tumor was intertwined with his vital nerves 4-12 in his brain & he underwent a massive 12+ hour brain surgery on March 1st 2022 to remove the tumor .. Surgery was a success & 99.9% of the tumor was extracted .. We followed up with Radiation..
Well he completed that radiation on May 26th .. We waited 6 long weeks before he could have a follow MRI to make sure surgery plus radiation got everything … Well on June 29th the same day we had his follow up MRI we got the devastating news that our little Dinosaurs cancer was back , but in a different part of his brain this time & it’s potentially fallen down to his spine .. We had another MRI on July 1st to take more in depth pictures of the spine to be sure it’s cancer as well because the radiology/oncology doctor was unsure on this one due to the first MRI only focusing on his brain & barely catching a small glimpse of his spine …
So right now is a waiting game because of this holiday (July4th) weekend .. I do however know he’s going to have to endure another brain surgery (potentially surgery on his spine if it is cancer) , radiation again & then chemo this time … The scariest part is that I haven’t spoken to the surgeon yet but I was told by Zoultans radiology/oncology doctor that they won’t be able to perform surgery through the same incision or the back of his head .. it will have to be preformed on the front of my baby’s face/neck area … We don’t know where or anything until next week sometime .. As well as his surgery will be scheduled for next week or the week after , so needless to say he will under go another traumatic/scary surgery & yet again he won’t understand.. I feel so hopeless & hallow y’all .. my poor baby doesn’t deserve this & I wish I could take it all from him .. This isn’t something I’ll ever except let alone understand.. but we don’t have a choice other than to fight because we are the only voice my baby has right now … So within the next 2 weeks we will be in the hospital for what seems like the 1000th time this year .. I just wish we could catch a break , I don’t know how I’m going to get through financially let alone mentally now .. My dinosaur got his roar back but now it’s being taken from him again … WE JUST WANT TO KEEP HIS ROAR ..!
Anything helps , we haven’t even gotten enough time to get back our feet from the first go around let alone now do to Zoultan falling back into remission .. I have had to quit my job a few months back for all of this & my husband can only work so much through these times .. You don’t have to donate , prayers are also MORE than enough at this time … Just share , share , share our story please ..
#WarriorZ #ZoultanStrong
As my baby Dinosaur says : “We are gonna kick cancers butt !!”
For anyone who is new & hasn't read or heard about our situation, Zoultan is my 2 year old son he will be 3 on September 9th .. February 27th 2022 Zoultan was diagnosed with a brain tumor called an Ependymoma .. The tumor was intertwined with his vital nerves 4-12 in his brain & he underwent a massive 12+ hour brain surgery on March 1st 2022 to remove the tumor .. Surgery was a success & 99.9% of the tumor was extracted .. We followed up with Radiation..
Well he completed that radiation on May 26th .. We waited 6 long weeks before he could have a follow MRI to make sure surgery plus radiation got everything … Well on June 29th the same day we had his follow up MRI we got the devastating news that our little Dinosaurs cancer was back , but in a different part of his brain this time & it’s potentially fallen down to his spine .. We had another MRI on July 1st to take more in depth pictures of the spine to be sure it’s cancer as well because the radiology/oncology doctor was unsure on this one due to the first MRI only focusing on his brain & barely catching a small glimpse of his spine …
So right now is a waiting game because of this holiday (July4th) weekend .. I do however know he’s going to have to endure another brain surgery (potentially surgery on his spine if it is cancer) , radiation again & then chemo this time … The scariest part is that I haven’t spoken to the surgeon yet but I was told by Zoultans radiology/oncology doctor that they won’t be able to perform surgery through the same incision or the back of his head .. it will have to be preformed on the front of my baby’s face/neck area … We don’t know where or anything until next week sometime .. As well as his surgery will be scheduled for next week or the week after , so needless to say he will under go another traumatic/scary surgery & yet again he won’t understand.. I feel so hopeless & hallow y’all .. my poor baby doesn’t deserve this & I wish I could take it all from him .. This isn’t something I’ll ever except let alone understand.. but we don’t have a choice other than to fight because we are the only voice my baby has right now … So within the next 2 weeks we will be in the hospital for what seems like the 1000th time this year .. I just wish we could catch a break , I don’t know how I’m going to get through financially let alone mentally now .. My dinosaur got his roar back but now it’s being taken from him again … WE JUST WANT TO KEEP HIS ROAR ..!
Anything helps , we haven’t even gotten enough time to get back our feet from the first go around let alone now do to Zoultan falling back into remission .. I have had to quit my job a few months back for all of this & my husband can only work so much through these times .. You don’t have to donate , prayers are also MORE than enough at this time … Just share , share , share our story please ..
#WarriorZ #ZoultanStrong
As my baby Dinosaur says : “We are gonna kick cancers butt !!”
Organizer
Lani Gregory
Organizer
Murfreesboro, TN