Rose is our daughter. She is 8 years old. For the first 15 months of Rose’s life she developed like every other little girl. She was crawling, had started saying a few words and was a happy, healthy child. However, in September 2012 everything changed. Rose began to show signs of regression; she stopped crawling, talking, smiling, laughing and even crying. As if this wasn’t distressing enough, she then simultaneously developed epilepsy. After initially checking (and eliminating, thank goodness) a brain tumour she spent a week in Alder Hey Hospital in Liverpool undergoing tests. Tests on Rose’s DNA are still on-going.
In many ways a diagnosis won’t change what we are doing to help Rose though. Since September 2012 she has progressed slowly but steadily. We hardly recognise the little girl who became so ill 4 years ago. She can now talk again and started taking her first steps 12 months ago (we're hoping for running and jumping next!!). She is a happy, bubbly little girl, whose humour and understanding of the world around her is fantastic, considering what she has been through.
She has even started mainstream primary school and loves every single second of it!
Unsurprisingly, despite her considerable progress, she is still some way behind her peers in terms of her development. She has some input from both physiotherapy and speech therapy, but the NHS, as supportive as it has been to our family, has no other form of treatment available. The USA does, however, in the shape of the Family Hope Center. This is obviously an expensive course of treatment, which is why we are asking for your help. The FHC has outstanding, proven results and with some hard work we believe that Rose will, one day, in the years to come, catch up with her peers and lead a normal, fulfilling life!!