Desiray Aaliyah Johns

hi my name is kaylea ramirez. last night, november 12, my sister Desi passed away unexpectedly.

Desiray has been a part of our lives for almost 18 years. i’ve never known a life without her. she was the only sister i had. she was a light in the dark. she brought happiness wherever she went. she was the sweetest soul in all of our lives and for her to be taken away from us is the most devastating loss i have ever felt. if you knew desiray or had met her even once you know that her presence would make a lasting impression on your soul.

if you didn’t know her personally here is a little bit about her past. she suffered many health issues, such as cerebral palsy. she was not able to live on her own at all. she required around the clock care and was fully dependent on someone. my grandmother did home health with my sister for many many years, ever since desiray was a baby. eventually my mother took over my grandmothers work. after so many years my mother decided to take desiray into our family permanently after an unfortunate situation with her biological mother. we didn’t want to see desi go into the foster system after she had been in her care for so long. after all she was family. like i stated before, me and my brothers had never known a life without her. that was one of the best decisions she had made for our family. sure our life routine had to be adjusted but that was a sacrifice we were all willing to take because we loved her so much. her biological sister, Kaylee(yes she has two sisters with the same name), made sure to always stay a part of her sisters life as well. she was always at our family gatherings and made sure to take the time out of her life to visit her sister and i know desiray loved that so much. she would have a special kind of glow to her skin whenever kaylee was around and i’m so grateful to have kaylee in our lives as well.

Desi loved music SO much. there was never really a time where she wasn’t listening to music. i know for a fact she had so many songs memorized that she was singing along to. she loved pretty lights. we used to always take her roller skating when skate zone was here. we would push her around in her wheelchair on the skating rink and she would have the absolute time of her life looking at all the lights and listening to the music with our family by her side. her smile and presence was the brightest energy of all though. she loved anything soft and fuzzy. this girl had so many stuffed animals and so many fuzzy blankets. she loved when you would rub it on her neck and cheek. one thing i’ll always remember is how funny she thought it was when i blew my nose. i have horrible allergies so i’m always sneezing. if you know how it sounds when i blow my nose you know. i could be in the living room blowing my nose and all of a sudden her laughter would be running down the hallways filling up the house. she would laugh until she cried. i will forever miss that. she went on so many trips and adventures with us and i’m so grateful that she was able to make those memories with us.

nothing can describe the pain and sorrow my whole family is feeling. a big chunk of our lives has been ripped from us and this is empty void is eating all of us alive. we don’t know what caused my sister to pass, it was completely unexpected. the autopsy is anywhere from $5000 to $15,000 which we cannot afford as of now. we just want some closure in order to help our healing process.

all funds will be put towards my sisters funeral and autopsy. thank you.

-the ramirez family

desiray and our family and friends on her 21st birthday ❤️