Deanna's Cancer Treatments

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$9,190 raised of $45K

Deanna's Cancer Treatments

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My name is Kim and I am setting up this fund for my daughter Deanna in hopes to fulfill her wishes of getting Alternative Treatments in addition to her Chemotherapy.A little history of Deanna’s Journey: In 2009 at the age of 13, just a week into starting her 8 th grade year, we found out that Deanna had a very large mass growing around her left femur bone which was later confirmed to be a rare form of bone cancer called “Ewing’s Sarcoma”. This of course was devastating to our family, not only my daughter was diagnosed but we have been reeling from the diagnosis 6 months earlier of my husband’s Small Cell lung cancer with brain metastasis, which is typically a terminal cancer. Thankfully my husband beat his cancer, but Deanna is still battling hers. She started aggressive chemotherapy immediately for 9 months, we just about lived at Yale New Haven Hospital. Mid way through the chemotherapy the plan was for her to have limb salvage surgery to replace her femur bone with a cadaver bone, rod, plates and screws. Thankfully successful. In addition to getting her treatment, the surgery, and intense physical therapy, she was being tutored at home because she was determined to graduate with her 8 th grade class, and she did! Scans followed every 3 months and we thought she was in the clear for about 9 months until we learned she relapsed in her right lung. It didn’t stop there, since that first relapse and many different chemotherapy combinations, Deanna has relapsed 4 times… both lungs, below her trachea and now possibly in her right hip region. She has undergone many lung surgeries to remove any tumors at time of relapse, lung resections and removal of her lower left lobe, radiation treatments on both lungs and also to her trachea,  all while maintaining passing grades in High School, graduating with her class, and working at Hot Topic. What I can tell you is Ewing’s Sarcoma only has 2 treatment protocols, after that, it is different combos of drugs. There has never been a specific chemotherapy drug for Ewing’s Sarcoma until this year, finally some hope for a CURE! There has been trials set in motion and on their way but will be some time before we even know how effective they will be, especially to someone who has relapsed several times. Deanna has decided that after doing some research into Alternative therapies, this is the route she wants to pursue. We support her decision fully. We have looked at several facilities outside the United States because other countries work with more cutting edge therapies that are not allowed or offered here. We are thinking outside the box because our choices are limited and need to try these while she can. Deanna is not looking for the Band-Aid or to keep her cancer at bay….she wants to be cured, she is in search of her cure! At this present time it is not with traditional chemotherapy alone. She’s done this for 7 years. Unfortunately, this comes with a high price tag because it is not covered by insurance. All out of pocket!! Alternative therapies, holistic medicines or herbal treatments are not even encouraged. In other countries they are and this is where she is at in her journey. We are hoping to raise the funds for her Alternative treatments, travel expenses and any (because you know there usually is), unexpected costs. The treatment will also include therapies to build her immune system back up and get her body strong again. The past 7 years her body has just taken a beating. Whatever way you can show your support we are sincerely grateful, no amount is too small, every gesture of kindness is appreciated more than you will ever know. Also, we ask that you please SHARE this page on FB, or email to friends or however you can spread the word and reach as many people as possible to help her reach her goal.
We THANK YOU in advance for taking the time to read about Deanna’s Journey, for all your generous support,
for continuing to follow Deanna’s progress and mostly for keeping her in your thoughts and prayers!!

MIRACLES DO HAPPEN!!

Organizer and beneficiary

Kimberly LaViola Shaul
Organizer
New Haven, CT
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