- M
- T
Hi Everyone, I would really appreciate your help!
I am fundraising for this amazing charity, DEBRA Ireland, which is the only charity devoted solely to the care and cure of EB. Epidermolysis bullosa (EB) is a distressing and painful genetic skin condition that causes the skin layers and internal body linings to separate. It causes a breakdown in the natural proteins that hold the skin together. The slightest touch can cause severe pain, blistering and sores. The skin blisters have to be lanced and dressed every day and this can take up to three hours.
EB has been described by a Consultant Dermatologist in Our Lady’s Children’s Hospital as “easily the most debilitating and devastating disease I have ever seen.” EB is currently incurable.
In March 2020, I will take on the DEBRA Ireland Arctic Challenge and I would really appreciate your support. As part of an all-female group, we will take on all the challenges that surviving in the Arctic Circle will bring. During this experience, we will learn to survive in freezing temperatures of up to -30 with no electricity, running water or comfy warm beds. This however, will not come close to what it feels like to live with EB.
My goal is to raise €7,000.00 for DEBRA Ireland, which will go towards:
- Having another EB expert nurse on the road, there is currently only 1 nurse based out of Crumlin Hospital but funded by DEBRA who travels around Ireland visiting patients homes, training other nurses, training SNAs etc.
- Providing families with a proper package of care locally, particularly with dressing changes
- Help towards extraordinary research opportunities that are not yet invested in
Any donation is hugely appreciated and will go a long way toward helping DEBRA Ireland and those Extraordinary Amazing people living with this disease.
You can find out more about DEBRA Ireland and the incredible work that they do by following this link:
www.debraireland.ie
I am fundraising for this amazing charity, DEBRA Ireland, which is the only charity devoted solely to the care and cure of EB. Epidermolysis bullosa (EB) is a distressing and painful genetic skin condition that causes the skin layers and internal body linings to separate. It causes a breakdown in the natural proteins that hold the skin together. The slightest touch can cause severe pain, blistering and sores. The skin blisters have to be lanced and dressed every day and this can take up to three hours.
EB has been described by a Consultant Dermatologist in Our Lady’s Children’s Hospital as “easily the most debilitating and devastating disease I have ever seen.” EB is currently incurable.
In March 2020, I will take on the DEBRA Ireland Arctic Challenge and I would really appreciate your support. As part of an all-female group, we will take on all the challenges that surviving in the Arctic Circle will bring. During this experience, we will learn to survive in freezing temperatures of up to -30 with no electricity, running water or comfy warm beds. This however, will not come close to what it feels like to live with EB.
My goal is to raise €7,000.00 for DEBRA Ireland, which will go towards:
- Having another EB expert nurse on the road, there is currently only 1 nurse based out of Crumlin Hospital but funded by DEBRA who travels around Ireland visiting patients homes, training other nurses, training SNAs etc.
- Providing families with a proper package of care locally, particularly with dressing changes
- Help towards extraordinary research opportunities that are not yet invested in
Any donation is hugely appreciated and will go a long way toward helping DEBRA Ireland and those Extraordinary Amazing people living with this disease.
You can find out more about DEBRA Ireland and the incredible work that they do by following this link:
www.debraireland.ie
Organizer
Mary-Jane Halpin
Organizer