Hi, my name is maryssa Foster and I have been dealing with postural orthostatic tecnicardia syndrome.( I will attach something with the meaning of p.o.t.s) Since September I have not been able to work and things have been crazy tough. Iv been through many doctors and everyone says the same thing noone In Maine can treat what I have. So my next stop is Boston I have been referred down there and waiting on an appointment with that being said we are already struggling financially with me being out of work, so coming up with the money to travel back and forth to Boston is not going to be easy for us, between gas, food, and possible hotel stays. Not sure how we will be able to do it so I am setting this up I know it's a long shot but I guess it's worth a shot! I understand alot of people dont have much but even a share of this post will be helpful, than you all so much any help at all I am so grateful. Unfortunately I happen to have just about every symptom listed below. Things have not been easy, at this time I can not work. I can't walk and cant fully stand, I have to have help doing just about everything my life has been flipped upside down. I have 2 sons Jensen who is 7 and rene who is 3, I just need to get better for them. There is no cure for what I have but I have Hope's that Boston can get me to a point of being able to at least walk again. Thank you all for any help
Summary Postural orthostatic tachycardia syndrome(POTS) is a condition characterized by too little blood returning to the heart when moving from a lying down to a standing up position (orthostatic intolerance). Orthostatic Intolerance causes lightheadedness or fainting that can be eased by lying back down. In people with POTS, these symptoms are also accompanied by a rapid increase in heart rate. Although POTS can affect men and women of all ages, most cases are diagnosed in women between the ages of 15 and 50. The cause of POTS is unknown. However, episodes often begin after major surgery, trauma, or a viral illness. In women, episodes may also begin after pregnancy and the symptoms may worsen or the number of episodes may increase right before menstruation. The goal of treatment is to increase blood flow and improve circulatory problems that may be causing POTS. Symptoms
Postural orthostatic tachycardia syndrome(POTS) is characterized by orthostatic intolerance and a rapid increase in heart rate. People with POTS often have hypovolemia (low blood volume) and high levels of plasma norepinephrine while standing, reflecting increased sympathetic nervous systemactivation. Approximately half of affected people have a small fiber neuropathy that impacts their sudomotor nerves (those that activate the sweat glands). Some individuals develop a reddish-purple color in the legs when they stand, thought to be due to blood pooling or poor circulation. The color change subsides upon returning to a reclined position.
Other symptoms that have been reported in people with POTS include: Blurred vision Lightheadedness, dizziness or fainting Heart palpitations Headache Poor concentration Tiredness Gastrointestinal symptoms (for example, nausea, cramps, bloating, constipation, diarrhea) Shortness of breath Head, neck or chest discomfort Weakness Sleep disorders Difficulty exercising Anxiety Coldness or pain in the extremities