The Next Step for Kyle

Im here on behalf of my grandson, daughter and  son in law. My daughter is the proudest women I know. And the hardest working.  When recently  offered some help from a family member, she got teary and said " I dont know how to accept help...I should be able to take care of my son myself"  It broke my heart. She has had to handle more then most and has done it so proudy with her head held high. She has always handled her own stuff. But there comes a time in our lives when we have to accept help. Its time now......
    Besides being born with a very rare Genetic condition ,My grandson is legally blind. He started losing his sight at 6 years old. Hes now 14 and recently said to me in the car "  Grandma, Im never going to get to drive cause I cant read the road signs. "  That broke a grandmas heart.
       My grandson started a new treatment recently. It requires they go to NJ for a full week, every 3 months.  ( this means a hotel room, missing school, missing work)  Insurance wont pay for this treatment at 2000.00 each time they go. This treatment isnt a cure...but what we are hopeing is it will keep him seeing untill a transplant is available.  After just one week of treatment ..on the drive home he was able to read a few road signs !!  And the other day he  looked at his mom and said " Mom, Im confused..I didnt know the living room was yellow, I thought it was beige like the other rooms "  !!!
 After one week of treatment...he was able to see the yellow !! As I said, this isnt a cure. And the small improvements dont last forever. He will have to continue these treatments, every 3 months, indefinitely. But  he can have a better quality of life while waiting for a transplant.   Please help me help my grandson and  his family.
  • Jill Beaudoin 
    • $100 
    • 65 mos
  • Francisco Suarez 
    • $30 
    • 66 mos
  • Peni and Steve Plucker 
    • $100 
    • 66 mos
  • Lisa Halloran 
    • $100 
    • 66 mos
  • Linda and Gary Gray 
    • $100 
    • 66 mos
See all

Organizer

Donna Whitehouse 
Organizer
Niantic, CT
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