Darcy Sullivan Karnes

Lucas and Chloe Karnes have a beautiful daughter named Darcy who was recently diagnosed with a rare neuromuscular disease called Spinal Muscular Atrophy (SMA).  It is a degenerative disease that is genetically inherited and progresses over time. Darcy is missing a certain protein in her body (SMN-1) and has a limited amount of its backup (SMN-2). Thankfully,  Cincinnati has an amazing children's hospital, and they specialize in treating SMA. The Karnes family will be traveling there regularly for all of Darcy's medical needs, including frequent appointments where she will receive injections of a breakthrough medicine called Spinraza.

The time taken off from work, cost of travel, and price of the medication are just a few of the expenses they have already begun to encounter, and will continue to face for the years to come.

Anything given goes to helping this amazing family, and just a small amount can make a difference. This money will be used for equipment, such as braces/standers, travel expenses, therapies and activities for Darcy. These are the best people I know, and if anyone deserves help it is this family. Updates will be made on here as regularly as possible.

Chloe wrote a touching blog on the situation, and it contains more details:  
https://chlobear44.wordpress.com/2018/08/04/i-grieve-yet-i-rejoice/