Many of you may only know what it is from the Ice bucket Challenge, it is the disease that used to find very few. It is the disease that you think is going to happen to someone else, something you hear about but never to you or your loved ones. Unfortunately, and unluckily last March of 2022 Amyotrophic Lateral Sclerosis found my father Daniel Legendre at the age of 59 years old, and the fight has been on ever since.

The majority of ALS medical treatments available to him and most patients as we know of are usually just a prolonging of life for a couple of very tough short years. Generally, ALS is a terminal sentence, but we do not believe it has to be. Since the exposure of ALS from the Ice Bucket Challenge, ALS treatments have been rapidly improving and scientific developments skyrocketing with more funding being put towards ALS every year. That being said there are a few new and noticeable treatments that are popping up over the last couple of years. Some of these treatments are even showing proof of recovery and true patient testimonials. Every day as dad and our family fight this disease, we are truly fighting for hope. There is not an easy way to say it, but our time is running out.

That being said we believe we may have found that promise of hope, the treatment that has given him and us that hope which is at “Body Science Functional Medicine” in Miami Florida https://www.bodyscience.life/ Most of these neurological disease treatments unfortunately come with a high price tag. This one is in upwards of $25,000.00 to $30,000.00 a month. With the price of just keeping my father in a decent quality of life over the last year, extensive costs of care, including a previously attempted gene therapy treatment, naturopathic, holistic and medically approved treatments that he has been trying, our village-only has the resources to fight so hard. In all of this, we still are not losing hope. My father, his wife and thanks to a couple of very generous friends (who we consider family) have been able to muster the principal funding to get this very promising treatment started and moving but are going to need support along the way to continue the treatment as required since ALS treatments differ greatly in length and effectiveness patient to patient.

All funding raised will be put towards Dan’s treatments to fight ALS and hopefully gain some recovery we have been seeing from this treatment process. We are also planning to begin further fundraising as required this spring and summer but for now, any help would give us that kickstart and possibility for the next couple of months of treatment and hopefully a chance to see some results.

When this all started, we never could have known the fight Dan was going to endure, the fight we would all join as a family, we truly come from a family of fighters and no matter how hard we swing back, this thing is tougher than anything we have ever fought. My father is a multiple-time cancer survivor, in full remission and one of the toughest men I have ever known, little did we know ALS can hit harder and faster than any of that. I initially thought this takes a village, but now with everything we can muster, a village is not enough, we need an army. I am asking with every bit of hope that we can, for an army of support for my father. If you can find it in your means, anything to assist would be greatly appreciated and never forgotten. Thank you from all of us for taking the time to read this