My aim is to assist both myself and others in their daily battles against this disease. I recently travelled to Boston, USA to discuss up-and-coming drug trials which I feel could be beneficial for both myself and other people suffering from MND. This obviously comes at a price, which isn't cheap, but raising money and awareness may just help me or someone else spend more time with loved ones.
Its not just the medical aspect I want to assist with, it is also the day-to-day activities that other people take for granted and which MND sufferers can no longer do. I am experiencing, and continue to battle, the loss of independence and how this disease can isolate you both physically and mentally. I would like part of my funding to go towards helping other MND sufferers to enjoy their life by purchasing specialized equipment to support and aid them. I want to assist these people to have days out to enjoy their shortened time and not be restricted due to the lack of independence or financial support.
Finally I want all MND sufferers to believe in themselves and have some hope that a cure can be found. Its hope and belief that keeps us going , never give up and never give in.
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