Dannys MND Foundation

Hi, my name is Danny and I have Motor Neurone Disease. My symptoms started back in 2012 at the age of 36 years old. This disease has changed my life significantly and will continue to do so on a daily basis, both mentally and physically. One thing I have learnt is that information regarding Motor Neurone Disease is hard to come by although ex professional sports people like Doddie Weir (Rugby)   Steven Darby (Football)  and Rob Burrow (Rugby league) all suffering from MND spend their time raising awareness and fundraising its still relatively unknown.  This is why I have decided to start this funding page.

My aim is to assist both myself and others in their daily battles against this disease. I recently travelled to Boston, USA to discuss up-and-coming drug trials which I feel could be beneficial for both myself and other people suffering from MND. This obviously comes at a price, which isn't cheap, but raising money and awareness may just help me or someone else spend more time with loved ones.

Its not just the medical aspect I want to assist with, it is also the day-to-day activities that other people take for granted and which MND sufferers can no longer do. I am experiencing, and continue to battle, the loss of independence and how this disease can isolate you both physically and mentally. I would like part of my funding to go towards helping other MND sufferers to enjoy their life by purchasing  specialized equipment to support and aid them. I want to assist these people to have days out to enjoy their shortened time and not be restricted due to the lack of independence or financial support.

Finally I want all MND sufferers to believe in themselves and have some hope that a cure can be found. Its hope and belief that keeps us going , never give up and never give in. 

http://house-mag.co.uk/2017/04/03/living-with-motor-neurone-disease/

Donations

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  • Anonymous 
    • £50 
    • 2 d
  • bernard weighell 
    • £50 
    • 2 d
  • Jan Rose 
    • £20 
    • 22 d
  • diana neal 
    • £20 
    • 24 d
  • Anonymous 
    • £5 
    • 24 d
See all

Organizer

Danny Fudge-Harman 
Organizer
Poole, South West England, United Kingdom
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