Danny's wheelchair fundraiser #dannyswheelz
Donation protected
Please donate to help Danny with this specialized wheelchair to aid in his healing and help with mobility. He is well deserving and keeps a positive attitude amongst all his obstacles. Below is a letter from Danny's mom explaining a bit more of his story. We will keep everyone updated and thank you for donating! I'm lucky to be a family friend of such great people and would love to help them make this happen!
#dannyswheelz
Hello,
I am Gwendolyn Perrone, mother of Daniel Perrone and I am writing this summary of Daniels lifelong struggles and his current medical situation hoping there is an organization looking to make what could literally be a life changing donation.
Daniel (Danny) is a 28-year-old man, born with Spina Bifida which caused partial leg Paralysis, and a need for a wheelchair, Hydrocephalus creating the need for a VP Shunt in his brain, a Neurogenic bladder and bowel creating the need for self-catheterization and colostomy bag. He has had more than 60 surgeries, most on his VP shunt. 10 years ago, he had 4 back to back brain surgeries for haemorrhaging and a cyst at his brain stem which resulted in a Chiari decompression (removing a piece of skull to reduce swelling) causing a traumatic brain injury. It took a few years for him to recover to 80% of the person he was before the TBI. Since then he has put in a lot of hard work to regain cognitive abilities. Communication and understanding some things are still a struggle.
His determination has been amazing, and he worked extremely hard to achieve his GED last year since his brain injury happened his Senior Year and he did not get to graduate with his class.
Funny, as if his life isn’t’ challenging enough for him, the last 3 years have been a nonstop struggle as he has been dealing with a constant open wound on his rear end. After his surgery on the wound in January 2020 the wound care team could put their fist in it to debride it. After surgery on it this week it is about the size of a ping pong ball but deep to the bone. The surgeons had to do a bone biopsy on his rear due to what they called chronic Osteomyelitis. He went home yesterday from the hospital with a wound vacuum on but must go every day to get IV antibiotics and 3 times a week to the hospital wound clinic for cleaning and bandage changing. They could not have made it more difficult for him asking him to constantly go back and forth by sending him home with a PIC line IV and a wound vacuum attached to him he has to carry, as he drives his own truck and has to lean against it to balance and lift his wheel chair in the back and them use handles around the shell to walk around and get in the driver’s seat. In February he will have to return for a wound flap surgery to try and seal this wound off.
The doctors do not want him on his rear more than a couple spread out hours a day. This is extremely difficult for a young man who spends most of the time in the hospital already. The one way the doctors say the wound can heal and possibly not return so frequently is for Danny to stay off his rear. For him that means laying on his side in bed or couch all day. The inability to sit in his wheelchair more than a couple hours a day takes away his ability to go out, keep a part time job or participate in any entertainment. That takes away the possibility of anything close to a normal life.
Learning all about his wound and what this could do to him the rest of his life, I started looking for ways for him to be able to get off his rear and out of the house to live life. I found the standing wheelchair that allows people to stand up while strapped to their wheelchair.
Link to Danny's wheelchair
Pegasus II (Semi-Power Standing Wheelchair) | Living Spinal
#dannyswheelz
Hello,
I am Gwendolyn Perrone, mother of Daniel Perrone and I am writing this summary of Daniels lifelong struggles and his current medical situation hoping there is an organization looking to make what could literally be a life changing donation.
Daniel (Danny) is a 28-year-old man, born with Spina Bifida which caused partial leg Paralysis, and a need for a wheelchair, Hydrocephalus creating the need for a VP Shunt in his brain, a Neurogenic bladder and bowel creating the need for self-catheterization and colostomy bag. He has had more than 60 surgeries, most on his VP shunt. 10 years ago, he had 4 back to back brain surgeries for haemorrhaging and a cyst at his brain stem which resulted in a Chiari decompression (removing a piece of skull to reduce swelling) causing a traumatic brain injury. It took a few years for him to recover to 80% of the person he was before the TBI. Since then he has put in a lot of hard work to regain cognitive abilities. Communication and understanding some things are still a struggle.
His determination has been amazing, and he worked extremely hard to achieve his GED last year since his brain injury happened his Senior Year and he did not get to graduate with his class.
Funny, as if his life isn’t’ challenging enough for him, the last 3 years have been a nonstop struggle as he has been dealing with a constant open wound on his rear end. After his surgery on the wound in January 2020 the wound care team could put their fist in it to debride it. After surgery on it this week it is about the size of a ping pong ball but deep to the bone. The surgeons had to do a bone biopsy on his rear due to what they called chronic Osteomyelitis. He went home yesterday from the hospital with a wound vacuum on but must go every day to get IV antibiotics and 3 times a week to the hospital wound clinic for cleaning and bandage changing. They could not have made it more difficult for him asking him to constantly go back and forth by sending him home with a PIC line IV and a wound vacuum attached to him he has to carry, as he drives his own truck and has to lean against it to balance and lift his wheel chair in the back and them use handles around the shell to walk around and get in the driver’s seat. In February he will have to return for a wound flap surgery to try and seal this wound off.
The doctors do not want him on his rear more than a couple spread out hours a day. This is extremely difficult for a young man who spends most of the time in the hospital already. The one way the doctors say the wound can heal and possibly not return so frequently is for Danny to stay off his rear. For him that means laying on his side in bed or couch all day. The inability to sit in his wheelchair more than a couple hours a day takes away his ability to go out, keep a part time job or participate in any entertainment. That takes away the possibility of anything close to a normal life.
Learning all about his wound and what this could do to him the rest of his life, I started looking for ways for him to be able to get off his rear and out of the house to live life. I found the standing wheelchair that allows people to stand up while strapped to their wheelchair.
Link to Danny's wheelchair
Pegasus II (Semi-Power Standing Wheelchair) | Living Spinal
Organizer and beneficiary
Valerie Nicole
Organizer
Oak Creek, WI
Gwendolyn Perrone
Beneficiary
