One of the conditions Danielle suffers from is an immune disorder called Mast Cell Disease, of which there are many types. It is rare, potentially life-threatening, and has no cure. Mast Cell Diseases are not well-known, and the specialists and labs in Nova Scotia lack the knowledge to make an accurate diagnosis. It's critical to be typed, as some forms are, or can progress to malignant.
It was recommended by several specialists that Danielle be referred to a world-renowned expert in Mast Cell Biology, at Brigham and Women’s Hospital in Boston, Massachusetts. Her specialists believe this trip is essential to improving Danielle’s health, and overall quality of life. Our Provincial Government has deemed this trip medically necessary and will be covering most, but not all of the expenses for this trip for Danielle, and one medical escort. Funds raised will go towards accommodations, food, transportation, passports, prescribed medications, lost wages, etc.
As you can imagine, medical expenses have been overwhelming through the past several years. I won't call them a burden, so much as an investment in ensuring Danielle has her best chance at success in life. I think she's destined to make a difference, and I hope you do, as well.
Any contribution, be it monetary, or by sharing Danielle's story, would be greatly appreciated.
Thank you for taking the time to read about Danielle.
Tanya Brown (Danielle's Mom)
A little more about Danielle
Danielle's diagnoses include; Mast cell disease, hypermobile Ehlers-Danlos Syndrome, adrenal insufficiency, dysautonomia, asthma, and ADHD.
Extremely active in the community, Danielle raises awareness of chronic pain and invisible illness. She is a co-facilitator and IT Coordinator for Atlantic Ehlers-Danlos Syndrome Society , a Halifax-based, non-profit organization for persons affected with one of the Ehlers-Danlos Syndromes or Hypermobility Spectrum Disorders.
In 2017, Danielle held a solo art exhibit, "Invisible: Portrayals of Chronic Pain and Invisible Illness" at the Pain Management Unit of the QEII, raising funds for the patient art therapy program. This exhibit brought about a change in how nursing students are taught the patient experience of pain, and has become a model for discussion in the Dalhousie School of Nursing curriculum.
To learn more about Danielle's journey:
From chronic pain to canvas: Halifax artist’s personal experience helps put spotlight on ‘invisible illness’
Halifax Heroes: The pain of her invisible illness through art – and a smile
- Vivian and Leonard Thibeault
- Richard & Yvonne Mousseau
- Elaine & John Coakley
- Pam MacDonald
- Brenda Martell
Organizer and beneficiary
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