Dan Hoag Appreciation
Donation protected
Every year the Chandler Commons Christmas light display chooses a family or two in need of financial support due to illness or tragedy. The Hoag family has been very blessed and has generously requested that any donations in their honor be directed toward the following families facing hardships.
Your generosity is greatly appreciated!
(1) A Local family: The family has three beautiful daughters, mother and father. The youngest daughters are 11 months old and mom is on an extended maternity leave. During what should be her time of joy and making many memories, they family had received some devastating news about mom. She was diagnosed with thyroid cancer. She recently had surgery to remove the thyroid glands cancerous nodules. She is awaiting the plan for the next steps. During this time, she doesn’t have any income or insurance due to being out on leave. The family does have insurance but not good coverage and it has a high deductible. All donations will go to her family in this time of need in their story. Thank you for your generosity.
(2) Clayton: Clayton was born on June 5th and was otherwise a healthy baby boy. Just a few days after his birth Clayton was diagnosed with a CPS-1 deficiency. CPS-1 is an extremely rare urea cycle disorder that effects about 1 in 1.3 million births. When the urea cycle is compromised, it causes ammonia to build up in the blood stream, which is highly toxic to the brain and is fatal if left untreated. When Clayton was tested upon admission to Rainbow Babies and Children's Hospital, his ammonia levels were somewhere around 2200, with normal being under 50. There are medications to keep the ammonia levels in his body under control for a while, but the only long term "cure" to CPS-1 is for a liver transplant. Clayton has had his initial liver transplant evaluation at Children's Hospital of Pittsburgh and are awaiting to get on the transplant list soon. Clay has come a long way from it looking like the worst possible outcome to being at a spot where there is light at the end of the tunnel. A new liver corrects the metabolic defect he has, but the neurological damage from the elevated ammonia level is something that he will be working through for a long time, probably most of his life, and is his biggest unknown. Thank you for your support.
Your generosity is greatly appreciated!
(1) A Local family: The family has three beautiful daughters, mother and father. The youngest daughters are 11 months old and mom is on an extended maternity leave. During what should be her time of joy and making many memories, they family had received some devastating news about mom. She was diagnosed with thyroid cancer. She recently had surgery to remove the thyroid glands cancerous nodules. She is awaiting the plan for the next steps. During this time, she doesn’t have any income or insurance due to being out on leave. The family does have insurance but not good coverage and it has a high deductible. All donations will go to her family in this time of need in their story. Thank you for your generosity.
(2) Clayton: Clayton was born on June 5th and was otherwise a healthy baby boy. Just a few days after his birth Clayton was diagnosed with a CPS-1 deficiency. CPS-1 is an extremely rare urea cycle disorder that effects about 1 in 1.3 million births. When the urea cycle is compromised, it causes ammonia to build up in the blood stream, which is highly toxic to the brain and is fatal if left untreated. When Clayton was tested upon admission to Rainbow Babies and Children's Hospital, his ammonia levels were somewhere around 2200, with normal being under 50. There are medications to keep the ammonia levels in his body under control for a while, but the only long term "cure" to CPS-1 is for a liver transplant. Clayton has had his initial liver transplant evaluation at Children's Hospital of Pittsburgh and are awaiting to get on the transplant list soon. Clay has come a long way from it looking like the worst possible outcome to being at a spot where there is light at the end of the tunnel. A new liver corrects the metabolic defect he has, but the neurological damage from the elevated ammonia level is something that he will be working through for a long time, probably most of his life, and is his biggest unknown. Thank you for your support.
Organizer and beneficiary
Tracy Zawie
Organizer
Strongsville, OH
Stacie Niemesch
Beneficiary
