13.1 Miles of Help for Damien

I'm running a half marathon in October, and I'm using that as a way to raise money to support my nephew, Damien, and his family.  

Damien is 4 years old and has mucopolysaccharidosis II (also called MPS II or Hunter Syndrome).  It's a rare degenerative disease that means his body doesn't produce an enzyme that breaks down sugars and proteins throughout his body.  

He has a tough road ahead, including: 
 - joint pain, muscle stiffness, and a limited range of motion
 - narrow airways leading to difficulty breathing
 - experimental enzyme infusions weekly for the rest of his life

And his family will need to pay for: 
 - medical treatments
 - co-pays
 - prescriptions
 - medical specialists
 - adaptive equipment

So how can you help? 
 - Contribute!  Maybe a dollar a mile?  Ten dollars a mile?
 - Spread the word.  Forward! Share! Link! Tweet!  
 
Everything will help, and everything will be appreciated.

Donations

 See top
  • karen sarfaty 
    • $50 
    • 46 mos
  • Anonymous 
    • $10 
    • 78 mos
  • Anonymous 
    • $10 
    • 79 mos
  • Anonymous 
    • $100 
    • 80 mos
  • Callahans 
    • $95 
    • 80 mos
See all

Organizer

Sarah Brydon 
Organizer
Portland, ME
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