Damian’s fight against spinal muscular atrophy

Hello we are the Mora-Galicia family from Las Vegas , Nevada and this go-fund me is to help us with our Damian and his fight against SMA (Spinal muscular atrophy) version en español abajo

Damian is our youngest son with older brother Matteo making us a happy family of 4, Damian was diagnosed with SMA type 1 at 5 months old . When Damian was born he was a perfectly normal baby but as he got older we noticed he wasn’t as strong as he should be, we then set up a doctors appointment to make sure everything was okay and his pediatrician expressed concern as well and recommended we do a genetic test to see is he could have something. We did the test and waited for weeks until we got the test results back and he was positive for SMA a genetic disorder that interferes with the body’s muscle tone. The disease is progressive and there is no cure, SMA is very rare and less then 3 babies a year are diagnosed in the state of Nevada where we live.SMA involves the loss of nerve cells called motor neurons in the spinal cord and is classified as a motor neuron disease making every day things like breathing, sitting, eating difficult because of the decreased muscle tone.

Thank fully Damian has a great group of doctors around him working hard to get Damian the treatments he needs , sadly these treatments are costly with the main treatment zolgesma costing over 2.5 million dollars. So we are asking to help us cover some of the cost of treatment for our hard fighting Damian. These funds would cover doctor consultations, hospital visits , drug cost and many more things our Damian needs.

All the funds with go into mom and dad’s account to help with all of Damian’s medical fees,Please keeps us in your thoughts and prayers as we go forward with fighting SMA thank you.

Version en español

Hola somos la famila Mora-Galicia de Las Vegas,Nevada y este go fund me es para cubrir Los gastos necesarios contra la battalla de SMA (Atrofia muscular spinal) de nuestro hijo Damian 

Damian es nuestro to hjio menor con su hermano mayor matteo haciendos una feliz famila de 4. Cuando Damian nacio no sabiamos que habia algo mal, pero con el paso del tiempo notamos que no estaba sufficentemente fuerte para su edad. Entonces  nos reunimos con su pediatra quien tambien noto su debilidad muscular. Ella nos recomendo ir con un neurologo quien le hiso prueba genetica. Esperamos unas semanas y al recibir los resultados, aparecio positivo para SMA. La enfermedad afecta el tono muscular de la persona enferma. SMA es progresiva y no tiene cura hasta la fecha. SMA es una enfermedad estremadamente rara, menos de 3 bebés son diagnosticados al año en Nevada donde vivimos. SMA involucra la perdida de nervios motores en la espina dorsal . Esta clasificado como una enfermedad de la neuronas motoras haciendo cosas normales como respirar,sentarse, comer, muy dificil por el bajo tono muscular.

Afortunadamente, Damian tiene un buen grupo de doctores alrededor para darle la atencion que el necesita. Desafortunadamente estos tratamientos estan fuera de nuestro alcance, zolgezma costando mas de 2.5 millones de dolares. Estamos pidiendo apoyo en cubrir el costo de tratamiento para nuestro pequeño luchador Damian. Este fondo cubriria consultas medicas, vistas al hospital, costo de medicinas, y cualquier cosa que nuestro Damian necesite.

Todo este fondo seria depositado en la acuenta de Mamá y papá para ayudar con todos los gastos de Damian. Por favor mantenganos en sus oraciones y pensamientos. Cualquier ayuda o compartir es agradecida

Muchisimas gracias !