Dylan Jensen “fighting for my life”

Story

My name is Dylan Jensen, most of you know know the story of the major developments in my life as of recent. But I promised an update and many have asked me to start one of these campaigns so I’ll kill two birds with one stone. I will save the entire long story and compress it as best I can. This all started with what I thought was an everyday tension headache that turned into a migraine. I laid down in bed to try to sleep it off, hoping for the best. Well it wasn't working so I just took more Excedrin and laid back down. The next thing I vaguely remember are paramedics in my room trying to wake me up asking me questions like what my name was and what day it was, I said Dylan and its Sunday morning the 4th of November! ( It was Tuesday evening, the 6th)So they immediately walk me out to the ambulance continuing to ask me questions about my pain level, where it was in my head, how long id had it, the normal protocol. When they got me in the bus all I remember is the paramedic telling the driver to "hit it, we gotta go now". There was a police escort waiting at the end of the gravel road, as we passed by them I saw out the back window, oh man something isn't right is all I thought. So they escort me to the hospital in Lake St Louis where they admitted me and did an emergency MRI and again immediately put me BACK in another bandaid box and rushed me straight to SLU downtown to the Neurosurgery  Dept where I got another MRI, a CAT scan and a plethora of other tests as I was admitted into the Neuro ICU. The next morning I was woke up by the Head of Neurosurgery  explaining what they had seen on the MRI.... "A very very large mass" on the right side of my brain. She went on to explain that initial visual reviews by the Neurosurgeons on staff determined that they need to get in there ASAP and take out this mass and do a biopsy to determine what it is. So the surgery was scheduled for less than 96 hours away. They started pumping me with pre surgery meds and kept me on pain meds so I could a least feel human. My parents rushed down, my squad started to rally around me and via phone, social, text, everyone was anxious, none more than me of course. So I went thru the 7 hour,  GPS assisted (yes the surgeons are guided by GPS via "buttons" they stick to my head), semi-conscious surgery basically picture perfectly. I went to recover in the ICU and was supposed to be stuck in bed basically for 48 hours or more. That's the average time it takes someone to "come around" and get balance and motor skills back after this type of a surgery, that's what I was told by my amazing girls (my nurse team). Well I was up after 4 hours walking around the ICU talking to everyone I could, I felt great, balance was better, speech was better (Id been slurry I guess), comprehension was better, mood, you name it. Turns out this thing was so big and pressing so hard against my PCM that is was effecting a lot of things. I would fall asleep at stop signs, POOF, out. and wake up 20 seconds later. I would fly off the handle at the dumbest little things, ALL that is gone, I am human again. The nursing team in the ICU loved me, I kept them laughing and on their toes to say the least. I think I asked two of them to marry me? LOL. Anyway they gave me the nickname "The Miracle". Reason behind it is NONE of the Docs or Nurses have ever seen anyone with a tumor that size be functioning. They told me at this point the patient is either in a vegetative state or dead, and I walked into the hospital talking to everyone and was up and talking to everyone just hours after one of the most challenging surgeries they perform. So "The Miracle" was born, and it stuck, everyone in the hospital knew me as the miracle, it was very flattering and embarrassing at the same time. So Ireland came to see me and we modified it to "Damaged Miracle"! which we like much better, its more fitting for me!Sorry I rambled, so we wait for the pathology to come back on what this thing is and in the meantime the surgeons all came to visit me and take pics with me and said they got 90-95% of the tumor out and could not be happier. They said based on the initial pathology, it was cancer and Id still have to have chemo and radiation to take care of the little bit left over. It was too close to my motor function region of the brain and they didn't want to risk it. So I got to drive my girls crazy for a few more days and during THAT time I got signed up for Medicaid, Disability, etc. They said no one will likely take a risk at hiring me to be a tech or fabricator due to my condition. (sad day for me, I cant do what I was bred and trained to do for a living anymore).So I get discharged and say my goodbyes to my girls and my Neuro team, lots of tears and hugs for them all saving my life. THEN.. the full path report comes back and I have online access to all my medical records in real time so I got notified it was in. Cancer...Stage 4 Glioblastoma..... my heart drops but I had been expecting this answer from the start its just hard to actually see it in writing . So this particular son of a bitch species of cancer is relentless, its apparently the most aggressive cancer on the face of the planet. I wont get into numbers here, you can google it if you want to know but its not good, like REALLY not good. So now my treatment plan has been supercharged, they were gonna hit it with a 500HP drag car and now its looking like a 2000HP Top Fuel Dragster is gonna be pumping thru my veins and shot into my head.This is gonna be the fight of my life, and I'm not gonna let this get me, and if it does it better pack a lunch because I'm gonna beat its ass over the parking lot before it does!!!Ireland does not know the extent of it yet and wont until after the holidays, I want normal happy holidays for my entire family so anyone that has access to her please don't mention this update.Finally we come to the worst part of this, the finances. I cant work I have literally thousands of dollars in medicine I take everyday 3 times a day now and until the Medicaid kicks in its all out of pocket for my parents and myself. I am in a rented hotel room which is gonna be nearly 2000.00 for the month I need it for treatments. I had to borrow a car to get Ireland to and from school and such to keep her life as normal as possible. I have 3 doc appointments next week, all out of pocket, I have treatments possibly starting at my appointment Dec 4th, the day after my 43rd birthday on Dec 3rd. And all right before Christmas.I told myself I was not going to do one of these things because I HATE asking for charity and people have helped me so much during this process already and its going to get much worse before/if it gets better. So as far as im concerned this is just an update post but my friends told me to make a campaign or they would and they thought the story better coming from the horses mouthSo there is the update on my brain hitchhiker and all I do ask for is prayers for my little girl, I'm her hero and she's daddy's little girl and this is going to be so hard for her.I love you all and Ill keep you updated on all social platforms and I am posting a HUGE video/pic montage very soon, I took pics and vids the entire time. Dylan Jensen11/24/2018

by Dylan Jensen
Donation protected



My name is Dylan Jensen, most of you know know the story of the major developments in my life as of recent. But I promised an update and many have asked me to start one of these campaigns so I’ll kill two birds with one stone. I will save the entire long story and compress it as best I can. This all started with what I thought was an everyday tension headache that turned into a migraine. I laid down in bed to try to sleep it off, hoping for the best. Well it wasn't working so I just took more Excedrin and laid back down. The next thing I vaguely remember are paramedics in my room trying to wake me up asking me questions like what my name was and what day it was, I said Dylan and its Sunday morning the 4th of November! ( It was Tuesday evening, the 6th)
So they immediately walk me out to the ambulance continuing to ask me questions about my pain level, where it was in my head, how long id had it, the normal protocol. When they got me in the bus all I remember is the paramedic telling the driver to "hit it, we gotta go now". There was a police escort waiting at the end of the gravel road, as we passed by them I saw out the back window, oh man something isn't right is all I thought. So they escort me to the hospital in Lake St Louis where they admitted me and did an emergency MRI and again immediately put me BACK in another bandaid box and rushed me straight to SLU downtown to the Neurosurgery  Dept where I got another MRI, a CAT scan and a plethora of other tests as I was admitted into the Neuro ICU. The next morning I was woke up by the Head of Neurosurgery  explaining what they had seen on the MRI.... "A very very large mass" on the right side of my brain. She went on to explain that initial visual reviews by the Neurosurgeons on staff determined that they need to get in there ASAP and take out this mass and do a biopsy to determine what it is. So the surgery was scheduled for less than 96 hours away. They started pumping me with pre surgery meds and kept me on pain meds so I could a least feel human. My parents rushed down, my squad started to rally around me and via phone, social, text, everyone was anxious, none more than me of course. So I went thru the 7 hour,  GPS assisted (yes the surgeons are guided by GPS via "buttons" they stick to my head), semi-conscious surgery basically picture perfectly. I went to recover in the ICU and was supposed to be stuck in bed basically for 48 hours or more. That's the average time it takes someone to "come around" and get balance and motor skills back after this type of a surgery, that's what I was told by my amazing girls (my nurse team). 
Well I was up after 4 hours walking around the ICU talking to everyone I could, I felt great, balance was better, speech was better (Id been slurry I guess), comprehension was better, mood, you name it. Turns out this thing was so big and pressing so hard against my PCM that is was effecting a lot of things. I would fall asleep at stop signs, POOF, out. and wake up 20 seconds later. I would fly off the handle at the dumbest little things, ALL that is gone, I am human again. The nursing team in the ICU loved me, I kept them laughing and on their toes to say the least. I think I asked two of them to marry me? LOL. Anyway they gave me the nickname "The Miracle". Reason behind it is NONE of the Docs or Nurses have ever seen anyone with a tumor that size be functioning. They told me at this point the patient is either in a vegetative state or dead, and I walked into the hospital talking to everyone and was up and talking to everyone just hours after one of the most challenging surgeries they perform. So "The Miracle" was born, and it stuck, everyone in the hospital knew me as the miracle, it was very flattering and embarrassing at the same time. So Ireland came to see me and we modified it to "Damaged Miracle"! which we like much better, its more fitting for me!
Sorry I rambled, so we wait for the pathology to come back on what this thing is and in the meantime the surgeons all came to visit me and take pics with me and said they got 90-95% of the tumor out and could not be happier. They said based on the initial pathology, it was cancer and Id still have to have chemo and radiation to take care of the little bit left over. It was too close to my motor function region of the brain and they didn't want to risk it. So I got to drive my girls crazy for a few more days and during THAT time I got signed up for Medicaid, Disability, etc. They said no one will likely take a risk at hiring me to be a tech or fabricator due to my condition. (sad day for me, I cant do what I was bred and trained to do for a living anymore).
So I get discharged and say my goodbyes to my girls and my Neuro team, lots of tears and hugs for them all saving my life. THEN.. the full path report comes back and I have online access to all my medical records in real time so I got notified it was in. Cancer...Stage 4 Glioblastoma..... my heart drops but I had been expecting this answer from the start its just hard to actually see it in writing . So this particular son of a bitch species of cancer is relentless, its apparently the most aggressive cancer on the face of the planet. I wont get into numbers here, you can google it if you want to know but its not good, like REALLY not good. So now my treatment plan has been supercharged, they were gonna hit it with a 500HP drag car and now its looking like a 2000HP Top Fuel Dragster is gonna be pumping thru my veins and shot into my head.
This is gonna be the fight of my life, and I'm not gonna let this get me, and if it does it better pack a lunch because I'm gonna beat its ass over the parking lot before it does!!!
Ireland does not know the extent of it yet and wont until after the holidays, I want normal happy holidays for my entire family so anyone that has access to her please don't mention this update.
Finally we come to the worst part of this, the finances. I cant work I have literally thousands of dollars in medicine I take everyday 3 times a day now and until the Medicaid kicks in its all out of pocket for my parents and myself. I am in a rented hotel room which is gonna be nearly 2000.00 for the month I need it for treatments. I had to borrow a car to get Ireland to and from school and such to keep her life as normal as possible. I have 3 doc appointments next week, all out of pocket, I have treatments possibly starting at my appointment Dec 4th, the day after my 43rd birthday on Dec 3rd. And all right before Christmas.
I told myself I was not going to do one of these things because I HATE asking for charity and people have helped me so much during this process already and its going to get much worse before/if it gets better. 
So as far as im concerned this is just an update post but my friends told me to make a campaign or they would and they thought the story better coming from the horses mouth
So there is the update on my brain hitchhiker and all I do ask for is prayers for my little girl, I'm her hero and she's daddy's little girl and this is going to be so hard for her.
I love you all and Ill keep you updated on all social platforms and I am posting a HUGE video/pic montage very soon, I took pics and vids the entire time. 

Dylan Jensen
11/24/2018
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