Spende geschützt
Dylan and Logan are two brothers who were recently diagnosed with MED13L syndrome. This is a rare syndrome - Dylan and Logan are 2 of 15 other known cases of MED13L syndrome.
MED13L syndrome is characterized by facial dysmorphism, Intellectual Disability, speech and language impairment, motor developmental delay with muscular hypotonia and behavioral difficulties.
Please join us in raising awareness for MED13L syndrome and raising funds to support Dylan and Logan and help offset the costs of their genetic testing, equipment and therapy needs.
MED13L syndrome is characterized by facial dysmorphism, Intellectual Disability, speech and language impairment, motor developmental delay with muscular hypotonia and behavioral difficulties.
Please join us in raising awareness for MED13L syndrome and raising funds to support Dylan and Logan and help offset the costs of their genetic testing, equipment and therapy needs.
Organisator und Spendenbegünstigter
Kelly Sexton
Organisator
Barrington, NJ
Ryan Sexton
Spendenbegünstigte