My name is Hendrix Johnson I was born on July 13 2014 with a rare genetic disorder called Cornelia deLange Syndrome. I was born with 2 fingers (one on each "hand"). I’m missing both of the bones in my forearms, and bones in the lower part of my legs, and I have clubfeet. Aside from my limb abnormalities I'm a very healthy and happy baby! We went to an Orthopedic doctor here in Atlanta, but they didn't think I'd ever be able to walk or get my feet straight. My mom and dad want to take me to Greenville SC to the Shriners Hospital to get a second opinion and help me see if there is a doctor there who will be able to straighten my feet and see if one day I will be able to walk, but we don't have enough money to drive there or get a hotel. We would be very thankful if our family and friends would help me get there! Thank you so much!
If you would like to learn more about my diagnois of Corneila deLange Syndrome you can go to http://www.cdlsusa.org