Main fundraiser photo

Jaxon's Fight

Donation protected

Jaxon Tanner Henson was born December 9, 2013. He was 2 months premature weighing just 3lbs 7oz. Jaxon spent 92 days in the NICU and on the 85th day was diagnosed with an extremley rare genetics disorder called Myotubular Myopathy. Only 1 in 50,000 people are born with it, and it's most common in males. XLMTM primariy affects the skeletal muscles causing weakness and hypotonia. Jaxon breaths with the help of a ventilator, feeds through a feeding tube, and attends physical therapy occupational therapy and speech therapy. We have created this page for everyone to join in on Jaxon's fight agaisnt XLMTM and help us find a cure! We would like to raise awareness for our MTM community, raise money for Jaxon's medical necessities, and donate to research for MTM. Go to www.facebook.com/jaxonsfight to join us in his fight! Thanks in advance for all of your support!

Donate

Donations 

    Donate

    Organizer

    Ashley Henson
    Organizer
    Inman, SC

    Your easy, powerful, and trusted home for help

    • Easy

      Donate quickly and easily

    • Powerful

      Send help right to the people and causes you care about

    • Trusted

      Your donation is protected by the GoFundMe Giving Guarantee