Jaxon Tanner Henson was born December 9, 2013. He was 2 months premature weighing just 3lbs 7oz. Jaxon spent 92 days in the NICU and on the 85th day was diagnosed with an extremley rare genetics disorder called Myotubular Myopathy. Only 1 in 50,000 people are born with it, and it's most common in males. XLMTM primariy affects the skeletal muscles causing weakness and hypotonia. Jaxon breaths with the help of a ventilator, feeds through a feeding tube, and attends physical therapy occupational therapy and speech therapy. We have created this page for everyone to join in on Jaxon's fight agaisnt XLMTM and help us find a cure! We would like to raise awareness for our MTM community, raise money for Jaxon's medical necessities, and donate to research for MTM. Go to www.facebook.com/jaxonsfight to join us in his fight! Thanks in advance for all of your support!